Hi, I have an 8yr old daughter who has mitral valve prolapse and pectum excavatum. In May she started complaining of shortness of breath, chest pain, headaches, tiredness, nausea, cold sweats. We went to dr he tested for mono which came back negative. We saw her cardio dr he said her heart is fine and holter test showed nothing. Well now she is having periods of dizziness, she doesnt want to stand for long periods as her legs hurt, she is seeing spots, her neck hurts and she still has shortness of breath etc. I think she has dysautonomia but I know her dr will blow off any info I find on the net. I found the closest center Vanderbilt in Nashville that treats this and called and the lady told me to just bring her to the er and one of their dr would check her out. My question is should I try to get a referral and make an appointment for their auto immune center or take a chance and go to their er? It is almost 5 hrs away so I hate to waste time and money but she needs help and her drs just think she is trying to get attention. Has anyone had experience at Vanderbilt? Any suggestions?
