Daisy86
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Posts posted by Daisy86
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I was thinking about trying this product: http://nl.bodybuildi...re/aw/back.html
Has anyone tried it out yet?
I was wondering if it would help prevent pooling in my abdomen if I would wear it on my abdomen with the ice pack in it.
What do you think?
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Thank you for your answer Corina.
I've been to the ME/CVS centrum Amsterdam, There they did several tests, including a tilt table test.
Half way through tests they told me I probably only had POTS, after the exertion test they said it was both ME/CFS and POTS.
Later on a doctor told me POTS was just a part of the ME/CFS, not a condition on his own. So I got a bit confused about that.
So I don't have a POTS doctor, just a ME/CFS doctor.
I could have a NO test done myself, but what would dat bring me if I don't have a doctor to do something with the results?
I hope someone can answer my questions about NO, I feel like I really need to look into that.
Since I took the Lysine my hr and bodytemperature dropped and I've been feeling better, so that must mean something.
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I'm from Holland, so sorry if my English isn't perfect
I've been diagnosed with ME and POTS this year, I've been sick and fainting for as long as I can remember and I'm 26 right now.
I've been taking Lysine and it makes me feel a bit better, actually a lot better.
I've been reading about NO (Nitric Oxide) and that this could be the reason that I feel better when I take Lysine, because Lysine slows down the Arginine that produces the NO.
I do have vasodilation, so it fits the rest of the story.
So you would think that this would mean that I have too much NO in my body.
So is it safe to say that I have normal flow POTS?
My doctor didn't know much about the NO story, so that's why I'm trying to find stuff out myself, I think there's something there.
My doctor also thought that I have low blood volume. But I've read that normal flow POTS patients don't have low blood volume, is this true?
He also wants me to quit taking the Lysine after 2 monhts, but I'm afraid to get worse after I quit the Lysine.
Is there anything else that I could try to relieve my POTS symptoms?
I've tried stockings and taking more salt and fluids but they didn't help at all, so I think my blood is pooling in my abdomen.
I always need to go to the toilet after I've been upright for a short while, maybe that's a clue.
My gastro intestinal system gets upset a lot.
I've been told that I could try a diet with less carbohydrates and nitrates.
As you probably already understand, I'm looking for answers, I want to know everything there is to know about my health issues. Anyone that could help me with that?
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I can't answer these questions, I've had POTS symptoms for as long as I can remember.
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I guess I'm the only one who only sleeps for 3 hours a night at the moment...
I expected there would be more people with this problem.
Active Wrap, What Do You Think?
in Dysautonomia Discussion
Posted
Thanks, that was exactely the information I was looking for.
I'm already wearing this one: http://www.wolfordshop.nl/product/boutique/opaque-naturel-forming-body/75061/g500004743
It already helps me, but I would like to try if I could have even more effect with ice packs.
So I would like to try to wear something with icepacks over it.
The binder you are wearing (NMPotsie) looks perfect for that, but I'm living in the Netherlands, so I have to see if I can get it shipped or something.
Thanks for the information