CherylR

My daughter takes Topamax as a migraine preventive. She takes it twice daily - morning and night. For breakthrough migraines, she takes Imitrex and Phenergan for the nausea, if needed. She has also used an over the counter herbal patch, BeKool for Migraines, which she found very helpful. I hope you find something to help with the migraines. As a parent, it is very difficult to watch your child suffer. Wishing you and your daughter well.

My daughter was originally diagnosed with orthostatic intolerance at the Mayo in Rochester in 2006. We had a week long stay and were sent home with a therapy program, which in retrospect, did more harm than good because it was all cardio. After a few weeks of therapy, we stopped because she was completely wiped out for two days after each 30 minute workout. Long story short, we finally got a POTS diagnosis in 2008 here in New Orleans after a continual decline. We were considering a return trip to the Mayo in Rochester recently for a re-evaluation of POTS as well as other interesting symptoms, however, we decided not to go when we found out about the new doctors being trained to see POTS patients. We were being referred by our current POTS doctor. Even though my daughter had been a Mayo patient in 2006, we were told that she would now be a new patient and would have to wait about 8-10 months to be seen. We were also told that any person who has a POTS diagnosis would be put through the weeklong POTS clinic first before any other issues would be assessed and that was the reason for the long wait time. The POTS clinic in the cardiology area only scheduled two patients a week. The new POTS clinic that would be opening in the internal medicine department was going to start scheduling patients beginning January 2014. We were assured that we would be called sometime in January with an appointment date. We have yet to be called. When we checked in early November 2013, we were told that there were 100 people ahead of my daughter on the waiting list and that those on the waiting list would be called first to be scheduled in the new internal medicine POTS clinic. We have decided to focus our efforts elsewhere. My personal feeling is that Mayo is probably a good place for a diagnosis but if you already have a diagnosis and need a little fine tuning, I'm not so sure that it's the best place to spend your money...unless, of course, it happens to be exceptionally conveniently located to you.