Tristessa

Oh my. I really feel sorry for those of you who have to deal with this type of pain daily and/or all over your body. I also deal with excessive sweating myself. I wonder if my pains are the beginning of something like what you are talking about? Did yours start out in smaller areas or all over?

I have just started havin this pain that starts at the bottom of my shoulder blades and goes across and down. It does not quite extend to my lower back/lumbar area. This pain feels like I am bruised and is very tender to the touch. Does anyone know what this is?

I really think mine might be related to MCAS as well but I haven't yet tried the H1/H2 blocker combo yet. I really need to try that. That would be so great if I could get some relief from benedryl. Sorry you have to deal with this too but it is so nice to hear that I am not alone.

So here I am again... Yet another night of leg pain. I used to believe it was related to my many food intolerances but my diet has been clean for a while (unless I have more trigger foods!?). So anyway, how many of you deal with leg pain at night? I suspect mine is from the blood pooling in my legs all day or nerve damage of some sort. It feels like it hurts down at the bone. It is not a muscular pain. My husband will rub/squeeze them for me and that seems to help them feel better to some degree. Why do you all think?

I love both my heart rate app & my bp tracking app! I agree StephL, I have been testing like crazy now!

Sorry to hear this. I hope you find many friendships and much support here! I just joined myself and so far feel right at home. (((hugs to you))) We understand.

Welcome! You are not alone! Not feeling the best today, so I can't post all that I normally would but just wanted to say hi.

Thank you & Hello to you too! I am sorry today is not a good one. I understand that all too well. Feel free to reply when you feel up to it.

I definitely have similar symptoms to you. Have you ever tried antihistamines (H1 or 2) have they helped? Do you flush easily? Important to stay hydrated. Reasonable to have your doc check a serum tryptase to help rule out mastocytosis.

Mine all exploded after an anaphylactic reaction to contrast. Now my most bothersome symptom is reactions to all scents.

More deets on my blog if curious...

I haven't tried antihistamines - yet! I am looking for the dosage/type information. Perhaps you could point me in the right direction. I do something that feels like flushing. I get all hot and slightly sweaty but I haven't turned red. I am not sure if that qualifies or not for mast cell issues. I also seem to have a malfunctioning thrist mechanism. I hardly ever feel thirsty and sometimes forget and go long periods of time without drinking a thing. (Bad I know!)

When I stand still to check my bp, I feel a strong urge to urinate and usually have to run off to the bathroom as soon as I get my reading.

I haven't had an alcat test but I have had extensive testing through Enterolab which pinpointed my intolerances to gluten, dairy, soy, yeast & egg. I also have 1 full Celiac gene and the antibodies and malabsorption to go along with all of that. I agree with the others here and would definitely consider a good 3-6 month trial of gluten free (or more?). It has helped me enough for me to NEVER want to eat gluten again!!!

My bp tends to fluctuate all over when standing from 80/50s up to 130/100s. My resting (lying) bp is usually 80/50s to 90/60s.

Thanks for your reply. I am about to search for your post but wanted to add (after seeing your signature) that I also suffer from Interstitial Cystitis and GERD but directly linked to food intolerances. I actually had IC as a child but it wasn't diagnosed as such. I also have a weird jaw (TMJ?) that 'clicks' out of place if I open my mouth wide. I also get extremely frustrated and overstimulated quite easily with lights, sounds, smells, etc. Our symptoms do sound very similar. At least I don't feel so strange anymore. There IS at least ONE someone like me. Thank you again for replying.

I was diagnosed with Mitral Valve Prolapse and Vasovagal Syncope about 10 years ago. At the time, I was having palpatations, shortness of breath, chest pains and fainting. No treatment was started until the symptoms again reappeared in 2005. I did start Atenelol for about 1 month back then but had adverse reactions to it (lower bp, lower pulse, dizziness, more fatigue and fainting). I stopped taking Atenelol because I found out I was pregnant. Since that time I have had 3 children and increasing 'odd' symptoms.

I have been doing a lot of research over the past few months and have now come to the realization that I suffer from dysautonomia and have symptoms characteristic of POTS. I have been keeping my blood pressure and pulse readings at various times and have performed numerous 'poor man's tilt table' tests on myself and the increase in heart rate is there everytime (usually doubles). I suspected at first that my bp was dropping upon standing because of the way it makes me feel but was surprised to find that it actually increases by 10 Systolic & Diastolic.

Immediately upon standing I get a head rush type feeling. I have to concentrate on my breathing because it feels like I got the wind knocked out of me. I get the blood pooling too.

I really feel this traces back to my early years in life though. I have never been able to tolerate medicines very well and never knew why. I have fainted for seemingly unknown reasons. I also can't run or exercise without getting short of breath and skyrocketing pulse. I have recently been waking with numb 'sleepy' hands and 'dead' feeling legs.

Over the past few years I have become intolerant of multiple foods and more chemical sensitivities. I smell phantom smells like something is burning that come out of nowhere and leave just the same. I can't breath dander from our chickens without an immediate reaction. I get sore throats out of nowhere and seem to always have sinus related problems.

Does this sound like anyone else here?

I have been reading here anonomyously for a few weeks and I really hope to make some new friends.