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E Soskis

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About E Soskis

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    Advanced Member
  • Birthday 11/15/1960

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About Me

AAG (autoimmune autonomic ganglionopathy); pacemaker; "necklace" graft for plasma exchanges; Plasma Exchanges every 6-8 weeks; Rx's include midodrine, propranolol, nexium, and vyvanse. GI involvement, peripheral neuropathy increasing, "coat-hanger" neck pain, cognitive involvement, cardiac dysfunction. Work full-time in office -unable to stand or walk for more than few minutes at a time yet, blessed to wake up each morning under God's grace and mercy!

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