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Alan-pots-IST

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About Alan-pots-IST

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  1. Immunoadsorption is an extracorporeal technique used for the removal of antibodiesand molecules from the blood. ... This selectivity, coupled with its highly efficient removal of the molecule, along with a favourable side-effect profile, has madeimmunoadsorption an attractive option in a range of autoimmune diseases. Immunoadsorption - a Potential Treatment for Chronic Fatigue Syndrome (ME/CFS) Has anyone had any luck getting this treatment for their dysautonomia on here?
  2. The cabbage juice can make you gassy, but for me it's not so bad and I'm already feeling better. Cabbage juice in the past has almost been a cure for me but it requires strict dieting no refined sugars no gluten 3 cups of cabbage juice a day for at least 20 days. I add celery to it as well so I end up with about 6 cups of juice a day. And I'm not exaggerating it really has been a miracle for my particular orthostatic issues. I suppose stomach inflammation can cause blood pooling and leaky gut can be a huge Factor an autoimmune so cabbage juice hits all those things
  3. I read it can also improve cardiovagal baroreflex sensitivity, and rutin can as well. but I can't find the particular article I read right now. so I don't know if it's oral they used, I believe the rutin was definitely oral, it's difficult taking vitamin C because when I have a flare up and need something my stomach is often inflamed, I got some dr. Mercola Liposomal vitamin C It's relatively affordable it's slightly more bioavailable than other forms of vitamin C, but doesn't come close two intervenience, I may pick up some calcium vitamin C buffered calcium next time I go to the store. years ago I did cabbage juice three cups a day 20 days and my pots orthostatic hypotension improve substantially so much so I started jogging and living a normal life, So I'm juicing now it's been about 7 days cabbage juice the green cabbage juice is what you need is really nasty
  4. I found this article that seems to imply vitamin C can improve orthostatic intolerance. I believe it says one gram vitamin C orally with carbohydrates can dramatically improve orthostatic intolerance, http://www.njecbonline.org/article.asp?issn=2348-053X;year=2015;volume=3;issue=2;spage=92;epage=98;aulast=Usman
  5. I have pots or orthostatic hypotension had it for the last 6 years I got hit pretty hard when it first happened, I stopped eating gluten and many of the symptoms got better I was very functional, But two months ago after an infection I had a relapse shortness of breath is a very big problem I can also see blood pooling in my hands and feet pretty scary stuff with the breathing. A few things have helped me one very important thing try to always breathe through your nose it relaxes you and activate your parasympathetic nervous system over the sympathetic. Also butcher's broom has a visible effect after an hour you can see the blood pooling go away in your hands and feet it's astonishing for me at least. But I take it moderately I don't think you want too much Construction just enough in my opinion to bring it back into some balance. An H2 blocker before you eat helps me to a bit but I don't think because of Mast Cell Activation disorder I just think it reduces blood pooling in your gut what counteracts the breathing problem. . And one other thing Liposomal Vitamin C it's easy to digest apparently helps with blood flow.
  6. Ab muscles counteract blood pooling? I was thinking about doing a few thousand sit-ups a day to strengthen my abs as a way to possibly counteract blood pooling for orthostatic hypotension. Does anyone know if this will work? Did I really say a few thousand I'll be lucky if I do a few hundred oh man I get carried away
  7. I was tested by him for your own good unless it's a safety issue don't be on the beta blockers are there going to affect the results of the test and it's going to be a waste of your time
  8. thank you for the information, When you say BUN is that UREA NITROGEN (BUN)? those numbers for the BUN seem to be good 18 7-25 Mg/dL and everything else no protein in the urine it's just the CREATININE numbers fluctuate eGFR NON-AFR. AMERICAN 78 and then 87 and now 70 . I have orthostatic hypotension don't know why my blood pressure drops by 20 when I stand and I get a fast heart rate when I stand. I think it's autoimmune. whatever I'm symptomatic and my blood pressure drops more my kidney filtration rate is worse. This is been going on for 6 years now
  9. I started growing broccoli Sprouts recently because of all the researchthat says they're incredibly good for many different things, but I'm concerned that they could ramp up my immune system and increase my orthostatic hypotension if it is in fact autoimmune causality. I'm trying to look it up online right now having a hard time finding anything does anyone out there have any ideas are know if broccoli Sprouts are a bad idea for autoimmunity or a good idea and I know that alfalfa sprouts are very bad for people with lupus and things like that anyway if anyone out there knows anything and can help me out I would very much appreciate some info on this
  10. My creatinine levels keep changing and whenever I'm most symptomatic my levels are low but for a while when I was running around jogging and I wasn't as symptomatic my kidney was doing better so I'm trying to figure out does low blood pressure or I mean orthostatic hypotension affect the test,
  11. i made a balance board im going to start useing eace day, im thinking it my help with muscle pump and fine tune the muscles in my legs. im thinking if it helps with my pots im going to live on it, even juggle on it. any one ever try this?
  12. a little bad news on the juiceing cabbage, i starting feeling dizzy the oher day, and its back today. my standing BP is 126 over 70 thats high for me, and my HR is 68 standing . i was feeling so good now even with my heart rate lower standing im getig dizzy. im hopeing its just some kind of timeing thing my body needs to get use to.
  13. yes, i do a whole cabbage a day, but im haveing a hard time with the taste.
  14. cool thanks for the links, im going to keep doing cabbage for the next 8 weeks, becuse of it being so good for the gut and then im goig to replace cabbage with something else to see if dose the same thing. cabbage it so yukky to julice omg
  15. i had a standing tremor, in my right leg but only a few times after a walk when it was hot, i did have something going on in my tumb. i realy hope your son gets over this. one other thing that did help me was takeing r-lipoic acid 300mg 2 times a day.
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