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picaresque

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Everything posted by picaresque

  1. Yes, I'm with you there. And Midodrine has just made it worse for me.
  2. Mytwo, I take Celexa primarily for anxiety and depression, so, for me, I go through my psychiatrist for that. At the same time, I have noticed the benefits listed above that I feel are POTS-related and not anxiety-related. Other antidepressants I tried had side effects that negatively effected my POTS - such as Lexapro make me more tremulous. I haven't had the drop in HR that lemons has had - I wish I did! lemons - I'm surprised that surprised that you were on 40 mg so soon, as that's the upper limit of dosage according to my psychiatrist! I'm glad you found a dosage that works for you.
  3. I take 30 mg of Celexa and I've found that it's helped to limit some of the feelings of "internal tremors," where I'd feel like my insides were shaking or sometimes like a short-circuit feeling, and also muscle twitches. I don't know if that was my nervous system malfunctioning or anxiety or both, but, while it still happens, it happens less being on that. Just the general feeling of relaxation that its brought on has helped me deal with my symptoms from a better state of mind. And I second what Dani said - if it's something you're interested in trying, it may take a few tries to get it right.
  4. I'm not currently doing exercise every day, but the best for me, even when feeling symptomatic, is swimming. I also like yoga, but I have had near-syncope changing positions at least once. So, I stay away from that when I'm very symptomatic, but can tolerate it with mild symptoms. I have an AM/PM yoga DVD that and I find that the PM is just the right intensity for symptomatic days, when I'm too tired to go to a class. When I'm feeling very well, I love to use the stationary bike at the gym. I've never been able to stand very long on the upright machines like the elliptical or stairs, but I hav
  5. Thank you both! I just scheduled an appointment with Dr. Abdallah for the end of June. Like you, Chaos, I find myself needing the health benefit of knowing that I have a diagnosis, at the very least. I'm lucky in that my symptoms are not at all debilitating, but are enough of a nuisance to make me constantly fatigued, and having a more definite answer would certainly give me some peace of mind!
  6. I'm a new member here and first, I just wanted to thank you all for choosing to build such a good community and share your knowledge and resources! This website helped me to understand what had been going on in my life starting around age 16. Now in my early 20s, my symptoms have increased. Falling over from near-syncope and fatigue became common occurrences. Other symptoms that had been there before increased, as well: frequent urination, constant thirst, palpitations, tremulousness, gastro problems (pain, constipation, diarrhea, bloating), among others - exacerbated by heat, exhaustion, and
  7. My "normal" is 50s resting and 80-90s standing, with little in the way of symptoms on some days. When I'm most symptomatic, I frequently get swing up as high as 160 and low as 40s. The days where I have the largest range are usually when I feel the worst, but like Chaos, sometimes there's no correlation that I can tell!
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