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CarrieJessica

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  1. CarrieJessica
    YES YES YES! I was passing out or coming close to it daily and very tachy even when sleeping, then I stopped passing out or even feeling like it to just getting a slight dizziness but then went bradycardia. After I got used to that I started convulsing and having vision issues... can only guess whats next
  2. CarrieJessica
    I am the opposite, I can have a normal BP while laying down and HR either brady or tachy. Or poor bodies are so confused.
  3. CarrieJessica
    I actually just went through something similar and wrote about it here ~~> http://justmildlymedicated.blogspot.com/2012/12/retraining-my-eyes-mfbf-monocular.html My diagnosis officially is Spasm of Accomidation. It may not be the same thing but as you said, as an adult with no prior issues of shaking or doubble vision this just kicked in on day.
  4. CarrieJessica
    I have OH also. I feel the same way but I usually blame it on Inappropriate Sinus Tachy and Bradycardia.
  5. CarrieJessica
    http://justmildlymedicated.blogspot.com/2013/01/symptoms-of-dysautonomia-side-effects.html
  6. CarrieJessica
    Plug in what you like at Goodreads.com and find other books to add. You can find me on it at http://www.goodreads.com/user/show/6544649-carriejessica
  7. CarrieJessica
    POTS is one of many issues that fall under Dysautonomia. In other words if you suffer from POTS you have a type of dysautonomia, however, you can have Dysautonomia and not suffer from POTS. (Inappropriate Sinus Tachycardia (and or Bradycardia), Orthrostaic Intolerance etc..) Hope that helps http://justmildlymedicated.blogspot.com/
  8. CarrieJessica
    I have TMJ, here is an article that relates TMJ with the autonomic system. http://garrysmithdental.com/cms/services/tmj/
  9. CarrieJessica
    I was very tired. At the low (I think 32) I felt like I was really sick and slept a lot. The docs didn't seem too concerned, they just monitored me. I was actually afraid to fall asleep because I thought I'd go into a coma. Apparently this was not a real issue but it scared me none the less.
  10. CarrieJessica
    I had 24 hours where I never went above 40, they monitored me at the hospital but eventually released me. The irony was the release papers said to come back if I was below 50... I was 48 when they discharged me.
  11. CarrieJessica
    I think I am going off to the Mayo Clinic in Spring, I will be interested in what they have to say!
  12. CarrieJessica
    Chaos, it does change you. Even when you set out to not be changed.
  13. CarrieJessica
    during my eye exam they did some extra testing for double vision and that when he saw the spasm. My pupil dilation still was within a normal range, just at the lower end of it.
  14. CarrieJessica
    I feel it for short periods of time often as well. The worst was in the chair during my EEG. They had me close my eyes and I knew I was in a stationary chair but it felt like it was tipping over which made my hr go crazy.
  15. CarrieJessica
    I have had "non sustained" V tach but that was during a stress test.
  16. CarrieJessica
    I am all over the place even when sleeping. Inappropriate Sinus Tachycardia was my culprit, it is another type of Dysautonomia and overlaps with POTS, as well as most other dysautonomia related issues.
  17. CarrieJessica
    Wow, had a wonderful visit with the eye doc after some scary double vision, blurred vision and light/dark sensitivities. I knew eye dilation was an ANS thing, but had no idea about the ciliary muscle and how Dysautonomia was really messing with my vision. I wrote about my experience here http://justmildlymedicated.blogspot.com/2012/12/retraining-my-eyes-mfbf-monocular.html Hope this might help others who have or may eventually find their vision to have issues. Hope everyone has a great day
  18. CarrieJessica
    I just wrote about vision and dysautonomia! http://justmildlymedicated.blogspot.com/2012/12/retraining-my-eyes-mfbf-monocular.html
  19. CarrieJessica
    I have a goldendoodle companion pet and am on a wait list for a service dog.
  20. CarrieJessica
    Please share your blog link, I am always looking for new blogs to fall in love with You can find my blog on FB too http://www.facebook.com/IamJustMildlyMedicated?ref=hl
  21. CarrieJessica
    *retyping. sorry.
  22. CarrieJessica
    Posting in chit chate because I am posting my blog link instead of retying my post. http://justmildlymedicated.blogspot.com/2012/12/dont-let-your-chronic-illness-define-you.html How do you find ways to not be defined by chronic illness? I think I am pretty well rounded person but gosh it just seems to take over everything sometimes.
  23. CarrieJessica
    I feel like I take 2 steps forward and one step back, trying to be thankful that at least I seem to be in forward motion... http://justmildlymedicated.blogspot.com/2012/10/to-pacemaker-or-not-to-pacemaker-that.html
  24. CarrieJessica
    My mother and sister have Dysautonomia as well as my daughter and I, I know great gene pool huh? My mother and sister have episodes very much like what you are saying. My daughter and I do not. It wasn't until my mom saw Dr Randy Thompson in Pensacola that she was able to get answers.
  25. CarrieJessica
    get another opinion from someone who knows POTS, I have never heard about anything staying any amount of time. My HR and BP fluctuate non stop.
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