Mytwogirlsrox

I'm having mine removed next month, I hope it helps

It happens in narcolepsy but has to do with the same neurotransmitters were dealing with & treatment is similar

Have you guys heard of cataplexy?

Badhbt-- are you still working? I'm chugging through nursing school

I feel so much worse the couple days leading up to my period! I feel dizzy, I get panic attacks etc stinks

You don't think a virus can trigger an auto immune neuropathy?

Not sure, but I get this from time to time.. One leg will get goose bumps or my scalp tingles. Is proamitine mididrone

Im sorry, this must be very stressful for you! Try not to panic, i know non-eds people get aortic aneurysms too. It just means you have a weakened spot in your aorta. I have a intra-septal aneurysm between my atrium. Have you been having symptoms related to it? pain, sob, Trouble swallowing ? How is your cholesterol? Are you on a beta blocker? What did the dr say about your BP?

There are stent sthey can place in the aorta to maintain its integrity. That might be a better option if you do have EDS

I'm sorry, I hope you can get this all worked out soon! Take care

It seems really scary!

Interesting that it could be a hereditary/ genetic thing rather than a straight allergic rxn

E Soskis-- personal question, but did they set you up with a straight/ intermittent catheter at home?

http://www.google.com/search?q=angioedema&ie=UTF-8&oe=UTF-8&hl=en&client=safari#itp=open0

I though this was interesting for all you mcad / mcas people. Angioedema is very similar to anaphylaxis. In fact is can be triggered by ace inhibitors. I learned a little about it today in Nursing school, and it piqued my interest

Wonder if it applies to any dysauto folks

Dehydration

Orthostatic hypotension

There are lots of others that can cause tachycardia but not sure they're positional in nature ( Addison's, thyroid diseases, kidney and adrenal diseases, structural problems with cardiovascular system, electrophysiology problems with your heart, endocrine diseases, bleeding to death lol, anemia....... List goes on an on lol)

There is a CA pots group on Facebook, you could see if any RNs are on there!

Well it can be done by any Registered nurse ,vocational nurse or medical assistant! I would gladly do it, but I'm in San Diego

Maybe there are some SF nurses on here?

Not including recovery & rehab! That's the surgery, period!

My dad is having a c3-c7 fusion it's approx $40,000

Welcome to having a mother in law! Lol! Sorry I just had a in-law conversation recently, mines a hag too! Best thing to do is ignore her, it's not about her, whether or not y'all have kids! Don't let it bother you, it's silly, and there will be many more instances of mother in law sticking her nose where it doesn't belong! Chin up, sounds like your headed in the right direction.. Don't let her silliness slow you down!

http://www.nejm.org/doi/full/10.1056/NEJMicm0810147

Thought this might interest you

Diabetes, neuroendocrine tumor...

Wow! Awesome

http://www.nejm.org/doi/full/10.1056/NEJMicm1103833

I know this is a waaaay old thread! But I knew someone asked about skin wrinkling, and I found this article

Rama, do you have any articles that say POTS can be a presenting sign of MS? I would be very interested in reading it! Thanks

I have two babies, and I go to nursing school full time 5 long days a week! My life is pretty normal minus the anxiety and paranoia that I'm gonna drop dead lol

Eek I didn't realize I made it sound like I've been diagnosed. Sorry, I meant down the road, like to a diagnosis.. Not there yet though

Thanks everyone! Im not diagnosed, just being investigated. I have abnormal glandular tissue and an abnormal scan... So?

I just can't imagine 2 really rare diagnoses right? Seems too bizarre.. Maybe not? Time will tell

Thanks for all the encouraging words

Last year this time I was diagnosed with Pots and NCS and now, I'm going down the breast cancer road... I'm 28! Seems unreal that I could have two rare diagnoses right?