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jpjd59

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Posts posted by jpjd59

  1. Can anyone tell me if (and how) they have had IVIG approved through their insurance company. My daughter has POTS and has recently tested positive for Lyme. A few years ago her neuro tried to get IVIG approved and it was denied. Any suggestions would be appreciated.

    Thanks!

  2. PictureofHealth:

    My daughter, who also has Lyme, has had a zillion symptoms, including vision and blood pressure issues. Like yours, eventually the symptoms go away - at least for awhile. Everyday is a new adventure of symptoms and trying to manage them.

    Keep fighting!

  3. Blue:

    So sorry for the rough time you are going through. I always thought that because we had health insurance we would always be fine, but now that our daughter was diagnosed with POTS (and Lyme, Babesia, etc.) we are also finding that most of the expenses we are incurring are not covered by insurance and we are paying out of pocket. What a lesson we have learned!!!

    Hope you get to enjoy a walk in the park soon to lift your spirits :)

  4. Rachel:

    I know California is quite far from where you live but there is a neurologist at Stanford (Dr. Safwan Jaradeh) who specializes in POTS. If Tyler's results come back showing nothing, you might want to call his office and talk to his nurse practitioner, Cynthia, to see if that is something that they could help with and if they would be willing to work with Tyler's doctor(s) back home.

    Pam

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