Sally22

Hi Forevertired and Debbie, I can relate so well to the movement disorders with the Dysautonomia. I'm starting to get the tremors now. I have had Dysautonomia (OH, POTS) for 8 years now. It seems like it is related to the lack of neurotransmitters and or I am wondering possibly a compensatory reaction to having a high heart rate and not enough blood in my head for so long. Does your abdominal muscles get really tight and spasms. Mine do with this condition and it weirdly helps my Dysautonomia, but sometimes causes a lot of acid reflux and difficulty speaking when it gets really tight. I'm taking clonazepam which is helps a small amount. I can't take a high dose of this because it causes my eyes to get to dry and I fall over so much easier, but still searching for other medicines and options. The movement disorder doctors have recommended botox into the abdomen to try to help,but other doctors have told me the abdominal muscles are such a large area that the amount of botox required to calm down the spasm is possibly going to have consequence on my Dysautonomia. It is tough to know what to do. I don't know if this was helpful or not, but just wanted to share just in case. good luck Sally

I have had Dysautonomia (POTS, OH) for about 8 years now and I started having what movement disorder doctors are calling myoclonus or belly dancer dyskinesia in my abdominal area. It is very rigid and often time makes it hard to eat without food coming up. When I asked if these two are connected one of them said it is highly doubtful (since more sensor nerves), but it just seems too coincidental to me. The trigger for my movement disorder is movement and the rigidity seems to be traveling into my neck area. I hope you find something that helps you more, but I would get another opinion if you can from a movement disorder specialist. Good luck, Sally