Hi I am new here. i was recently diagnosed with pots, neurocardiogenic syncopy, and trigeminal neuralgia. among many other anemias and diffiancies. I used to work full time as a hospice nurse and take care of my kids both with medical issues and my husband that is disabled due to a back injury aquired at a foundry. Thinking back i guess it started about 5 years ago when I would pass out for no real reason, i broke the vaccume by landing on it ha ha . It kept getting worse for about a year when i had my halter moniter on my hr was at 177. than it seemed to just be annoying and was put on a cascade of beta blockers and antidepressants for the last few years and was told over and over agIN THAT IT WAS ALL IN MY HEAD AND I HAD TO DEAL WITH STRESS BETTER. March of last year was the kicker when I passed out and took a patient down with me. I have been out of work since then and have had severe symptoms of just sitting up right and passing out, trouble chewing, due to muscle fatiuge and trigeminal neuralgia. I dropped 25 lbs and only being 120 and 5'7" to begin with didnt help any. I get tremmors in my head face arms and legs, rapid muscle fatiuge, no appatite, etc... My home away from home is the mayoclinic where most of my newest diagnosis have been made thankfully! I do the salt, water, agtoraide midodrine, amnilodipine, b12 inj for pernatious anemia, cq10 for mito issues d3 for that diffiancy blenderized diet along with maltodextrine and ultrameal plus 360 for weight issues and multivites. My neurologist deemed me as being incompasitated.. for how long i dont know he said it will take atleast a year before they can have me leveled out. I dont know where that is. my husband says they are going to get me fixed but I have a hard time believing that. I have 2 kids at home still and it breaks my heart when i look up from the floor and see my 7 and 9yrold terrified looking down at me.I hate that they have to add more things that they have to do because mom is broken. the simplest things make me bed ridden. I love running, biking and working on cars mostly i miss my independance! I used to take care of everyone, sons neurologist daughters mito docs and husbands pain clinics. How do I learn to navagate this ?there is sooo much i still want to do but have a body that traps me.I cant talk on the phone for very long and some days not at all it wears me out and leaves me gasping for air...Any tips or advice? I am 32 and am as moble as a 90 yr old with chf... thank you, kim