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Everything posted by cyndi75rose

  1. I see Dr. Marquez (neurologist) specializes in autonomic disorders at Froedert for my issues. I have only seen him once but I was really happy with him. At that point I was happy with anyone that believed me (lol) and wanted to help. Anyways he is an option to consider. He is a true believer in exercise to help issues.
  2. Thanks Everyone. Sounds like it is a lot more common then I realized. I know my nerve are not compressed. I walk around all the time day and night with my feet and hands going numb. Definately worse at night. When this happened I was on my back. With my arms out straight. Not laying on them so I don't know. But it was scary.
  3. So last night I woke up in the middle of the night and moved to my side and brought my right hand up to scratch my face and it was almost dangling from the wrist. Like I had absolutely no control of it what so ever. It was completely asleep but even worse than that like I could not move it. It took me a minute to even realize what was happening and it kind of really freaked me out. Probably took a good few minutes for it to wake up but during that time it was completely useless like it wasn't even my hand. I have always had numbness, tingling in feet and in my hands but this was different.
  4. All the time!! When it happens its awful. I get that and the feeling of something bad is going to happen. Like anxiety but its not.anxiety. I don't know, but I totally understand what your feeling.
  5. Definately agree with the heat, even when its not technically hot, everyone else looks at me like I am crazy and I am literally melting and feel awful. It's ridiculous, Others symptoms that are bad; Fatigue, Hand and feet going numb, blurred vision. Anxiety can be pretty bad too.
  6. Yes omg how ridiculous of me. I totally meant that. lol Thanks.
  7. Sounds kind of bad to use a drug to stop the side affects of a drug but I have the same issue with my cymbalta, I wake up frequently all night and never get good sleep. I started taking a xanax to help me sleep. I take them more as needed but when I am having a bad night I get up take one and usually I am out til morning. I don't want to get off the cymbalta cause it helps me a lot with my nerve pain. Its hard to figure out which is worse.
  8. My doctor is Dr. Marquez. The testing there is wonderful and I really am pleased with my care. They do listen and try to help.
  9. I just have a question. I have been experiencing a lot of nerve pain in the head and neck and the doctor has prescribed my cymbalta. I am willing to try it but it is a name brand drug and rather pricey so I do not want to try it if it is not going to work. Has anyone been proscribed or tried this and what is your opinion on it?
  10. I have vision issues no matter what I am doing. It differs throughout the day from having nothing, to a spot in my vision, to blurred vision. When I am extremely symptamatic, I get the bottom half of my vision is completely blurred. I wish I had words or advise for it but I have yet to learn how to fix it. stay positive.
  11. Hi Mandy, Wecome to the forum. I just wanted to share that the hand tingling is very common for me. Some times I get it in just my fingers, sometimes my whole hand, sometimes up my arm. Can be on boths sides too. I also experience it in my feet at times. Nothing ever comes of it and it can last a long time and then go away. I don't know if it is a common symptom but I have it happen a lot. Cyndi
  12. Good Question. I have also had the 48 hour monitor done and was just asked if I was working out a lot. I am like no not at all. They said my heart rate would spike a lot but it was in the normal range. Now that you wrote this post, I would like to get a copy of it to see when and why my heart was doing what it was doing. Let us know if you get any where with it.
  13. Rich, I have had many issues my whole life with pneumonia. I have had asthma and breathing issues as long as I can remember so almost when ever I get a cold it will go into my lungs and I end up on antiobiotics and steroids. I am also allergic to penicillian and they always give me the Zpack. I have never had any problems taking the zpack or with it making symptoms flare up. Although when I am sick I tend to have more issues or maybe they just feel worse cause I am sick. As for the Strep test. They usually take a culture and then do something to it right away that will tell if you most
  14. I get this often. I feel extremely hungry and then my heart starts going nuts and I get hot, sweaty and feel like I am going to pass out. Its very scary. This usually happens when I am sitting at my desk at work. But I have had my blood sugar tested and its fine. I have learned it's just part of my autonomic dysfunction.
  15. I have been having huge issues with my husband since getting diagnosed. Well we have had some issues the whole marriage, but not this bad, but he is definately not a caretaker. I have had issues my whole life and we have been together for almost 14 years, so he has seen it, and lived it with me, but it has been getting worse in the last 3 years or so, I had my third child three years ago. I am having more and more issues. More fatigue, more episode, more problems. I never pass out and I am mostly fuctionable so I think he just thinks I am faking it or something. I don't know. He seems to
  16. Hi, I am very new to this site (this is my first post). I have not been diagnosed with anything besides a positive table tilt test (AWFUL) mostly because the neurologist that I went to had no idea what to do with me and referred me to Frader and I am currently awaiting my appointment there. I have had issues my entire life and have never known at all what is wrong with me. I remember the first time I got my period at like 12 almost passing out. The world got very fuzzy, I got extremely hot and it just started blacking out. Since that day i have had too many to count episodes like that.
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