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About cyndi75rose

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  • Birthday 10/27/1975

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    Racine, Wi

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  1. Definately agree with the heat, even when its not technically hot, everyone else looks at me like I am crazy and I am literally melting and feel awful. It's ridiculous, Others symptoms that are bad; Fatigue, Hand and feet going numb, blurred vision. Anxiety can be pretty bad too.
  2. My doctor is Dr. Marquez. The testing there is wonderful and I really am pleased with my care. They do listen and try to help.
  3. I just have a question. I have been experiencing a lot of nerve pain in the head and neck and the doctor has prescribed my cymbalta. I am willing to try it but it is a name brand drug and rather pricey so I do not want to try it if it is not going to work. Has anyone been proscribed or tried this and what is your opinion on it?
  4. I have vision issues no matter what I am doing. It differs throughout the day from having nothing, to a spot in my vision, to blurred vision. When I am extremely symptamatic, I get the bottom half of my vision is completely blurred. I wish I had words or advise for it but I have yet to learn how to fix it. stay positive.
  5. Hi Mandy, Wecome to the forum. I just wanted to share that the hand tingling is very common for me. Some times I get it in just my fingers, sometimes my whole hand, sometimes up my arm. Can be on boths sides too. I also experience it in my feet at times. Nothing ever comes of it and it can last a long time and then go away. I don't know if it is a common symptom but I have it happen a lot. Cyndi
  6. Good Question. I have also had the 48 hour monitor done and was just asked if I was working out a lot. I am like no not at all. They said my heart rate would spike a lot but it was in the normal range. Now that you wrote this post, I would like to get a copy of it to see when and why my heart was doing what it was doing. Let us know if you get any where with it.
  7. Rich, I have had many issues my whole life with pneumonia. I have had asthma and breathing issues as long as I can remember so almost when ever I get a cold it will go into my lungs and I end up on antiobiotics and steroids. I am also allergic to penicillian and they always give me the Zpack. I have never had any problems taking the zpack or with it making symptoms flare up. Although when I am sick I tend to have more issues or maybe they just feel worse cause I am sick. As for the Strep test. They usually take a culture and then do something to it right away that will tell if you most
  8. I get this often. I feel extremely hungry and then my heart starts going nuts and I get hot, sweaty and feel like I am going to pass out. Its very scary. This usually happens when I am sitting at my desk at work. But I have had my blood sugar tested and its fine. I have learned it's just part of my autonomic dysfunction.
  9. I have been having huge issues with my husband since getting diagnosed. Well we have had some issues the whole marriage, but not this bad, but he is definately not a caretaker. I have had issues my whole life and we have been together for almost 14 years, so he has seen it, and lived it with me, but it has been getting worse in the last 3 years or so, I had my third child three years ago. I am having more and more issues. More fatigue, more episode, more problems. I never pass out and I am mostly fuctionable so I think he just thinks I am faking it or something. I don't know. He seems to
  10. Hi, I am very new to this site (this is my first post). I have not been diagnosed with anything besides a positive table tilt test (AWFUL) mostly because the neurologist that I went to had no idea what to do with me and referred me to Frader and I am currently awaiting my appointment there. I have had issues my entire life and have never known at all what is wrong with me. I remember the first time I got my period at like 12 almost passing out. The world got very fuzzy, I got extremely hot and it just started blacking out. Since that day i have had too many to count episodes like that.
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