Jump to content

SeattlePotsy

Members
  • Posts

    33
  • Joined

  • Last visited

Posts posted by SeattlePotsy

  1. Do any of you take Benadryl and find it helpful? I have non epileptic seizures, tremors, surges,etc and I have found Benadryl to be the most helpful with the fewest side effects (used to use Ativan and be so out of it all the time). Just curious if anyone else has had a similar experience…?

  2. I have noticed that my symptoms have morphed a bit over the last 4 years. Recently when I am not feeling well it seems to affect my emotions and how I interact with people more than before (very easy overstimulated/irritable, quick to anger, etc). I have also had these times when I will be interacting with someone and a normal reaction would be to be a little annoyed or slightly angry but I get a huge surge or adrenaline and feel RAGE! I have to leave the room and I have so much adrenaline that I feel like I am going to explode…and sometimes my body just starts crying (it's weird because the crying feels so physical…like a symptom or something). This is really frustrating me and making me feel not like myself. Wondering if anyone else has any similar experiences?

  3. I have POTS and have tremors and non epileptic seizures as one of my primary symptoms. I also get GI issues, vomiting etc. I try to eat smaller meals more frequently as I have noticed symptoms following meals as well. Fluids, relaxation/diaphragmatic breathing, and sometimes oral IM or IV Benadryl seen to help me.

  4. i have seizures but they are non-epileptic and from my POTS...I can tell when they are coming because I get large surges of adrenaline in my chest. Usually by BP and heart rate go up quite a bit too. I am not unconscious but sometimes very out of it and can't talk. I hope you can get an EEG soon and figure out what is going on. Sending thoughts your way

  5. That is really interesting about the medical profession! I am a nurse too and worked on a post op surgical floor when my symptoms started. This December will be three years sense I have been able to work. I too would love to find a way to use my skills but the waxing and waning of symptoms does make it difficult.

  6. I have had POTS for 2 and a half years and have had many doctors (especially in the beginning) say that my symptoms were just from stress and purely psychological. I have GI issues (nausea and vomiting) and body tremors and non epileptic seizures as part as my symptoms and I was told today that they are just psychological and not related to my POTS. I struggle with this because I know stress plays a role in POTS symptoms but interactions like this one make me second guess myself and my pyche. Anyone else had an experience like this? What helped you to come to a conclusion about your symptoms and stay positive in working for recovery?

  7. I have the same thing happen!!! My heart starts pounding, feel light headed, blurred vision, difficult to speak, extemities cold, face flushed, full body tremors that look like seizures...the autonomic doc at Mayo described it as a sort of autonomic storm (though not as severe as the typical autonomic storms accociated with brain trauma). I also vomit with these episodes. I often take ativan and sometimes phenergan to help them stop...but that definitely leaves me feeling wiped out. Fluids definitely do help. I have found 0.3 of Florinef to be helpful but still in seach of the perfect drug regime to relieve symptoms. Best of luck to you!

×
×
  • Create New...