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About SomethingClever

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  • Birthday 05/29/1983

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    Chicago, IL

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  1. My free testosterone has come back on the low end of normal, but I don't have any issues with libido. I'm basically the opposite of you, the desire is there big time but I just don't feel well enough to date.
  2. Heh, I'm tired of doctors too. But it seems like the only alternative is never getting better, so I'm willing to put up with whatever I need to for at least a chance at recovery.
  3. So obviously finding your underlying cause makes a huge difference in finding effective treatment. I haven't been able to find a doctor invested in running down all possible underlying causes, but Mayo is willing to see me again to run the basic autonomic tests again and allegedly tell me my POTS subtype. It's going to be a tremendous pain to fly out there and I'm wondering if it's going to be a waste of my time. I'm going to go regardless, but I'm wondering if those of you who know your subtype have found that your treatment has become any more effective as a result of knowing?
  4. I too just want to commend those of you who are going to work, taking care of kids and cooking dinner and doing all that. Taking care of myself is work enough these days. Fortunately my job is letting me work from home, as I pointed out that I wasn't getting anything done if I was feeling horrible all the time. If I hadn't had enough time built in already proving myself with them, I don't know what I'd be doing.
  5. I live alone so really only have to worry about myself and keeping up with work / my apartment. Get up at 6. Shower, get dressed and then rest for a few minutes before getting up and working. Work consists sitting at my laptop, typing emails, contracts and making sales calls, which I can usually do without taking much of a break until lunch time. Sometimes lunch consists of going to the store and getting soup, which is often my big outing for the day. Other times it's making a sandwich here or eating leftover delivery. After lunch I usually rest for a half hour to an hour and watch some t
  6. Getting a hair cut is the WORST. Between my noise intolerance and the cape around the neck, it's brutal. It's enough to make me consider a buzz cut just to get it over with faster, but this last time I realized even the noise of the clippers buzzing in my ear really bothers me. I've learned to deal with my strange body as well (last hair cut I just got hair all over me instead of having the cape tight enough), but would love would day to not have to deal with all this nonsense.
  7. So I know compression stockings and abdominal binders can sometimes help. I seem to be in the opposite. Tight clothing of any kind really makes me feel worse. It's gotten to the point where I can't button the top button on a collared shirt. Having a tie on or even rolling up my is bad as well. I bought a pair of shoes that was apparently a size too small and had the same feeling. Can anyone relate? Can anyone speculate on what would cause this or what it might indicate about me?
  8. Once I had a referral from my primary care, it took maybe 3 or 4 months to get into Mayo. (Possibly longer, I'm having trouble remembering specifically.) I recently called Mayo myself to see if they would see me again for more in depth testing, and have a tentative appointment for October.
  9. That's an interesting thought, Wendy. As a younger man, I drank a TON of caffeine and I've since cut it out almost entirely. I'll have to experiment and see if it helps.
  10. New to the forum and wanted to get your insights on an ongoing point of frustration for me. I see no way to keep this from being long winded, so I apologize in advance. I'll start with my history and then give you a break where my actual question is, so you may feel free to skip to that. I'm a 29 year old male. Symptoms started unbeknownst to me a long time ago. Little things like feeling faint during a really hot shower or being completely exhausted after playing basketball seemed like no big deal but make more sense is hindsight. Approximately 7 years ago I started having arm pain and ta
  11. My biggest symptom is complete lack of stamina. I'm intolerant to anything after not too long. I'm able to get around walking for short periods. But if my grocery store trip takes longer than 5 minutes, I'm in trouble. I can sit up for longer, but need periodic breaks to lay down as well. I've only fainted once in three years. Most of the time if I push myself too far I just feel like garbage.
  12. I have the same reaction and have been that way for a couple years now. I can only sleep on my back, which is incredibly annoying if I'm having trouble falling asleep because I can't really shift positions. Having to lay on my side to get an echo a few months ago was no fun. None of my doctors have been smart enough to tell me the reason, but I agree blood pooling makes the most sense.
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