mully2014

I've noticed that when I feel sick I can feel like I'm gonna be fainting at any moment. After getting sick from my body not tolerating a med I've passed out too. I agree with you 100% this condition is terrible to deal with! Wish you the best of luck in the future!

It is definetly overwhelming at first but as you start to get things figured out with your condition and with the school, it will get better. I'm also in 10th grade so I know that it is really hard to catch up with schoolwork and that people can really not be understanding. I hope that your doctors get you started on a good treatment plan and that you won't have to be homebound because that can be really tough to deal with emotionally and socially. Wish you the best!

Hope that all will go well and that your school will be understanding (educating people is the only way to get the help and understanding you need from other people). Wish you the best of luck with your new plan.

Hi, I get this feeling a lot from my medications and a way to help that thirsty/dry mouth feeling is sucking on some hard candy, mint or sometimes even gum. I hope this helps!

rubytuesday: Thanks for responding. Yes, I've worn a helmet before for the concussions. Unfortunately wearing a helmet still can't prevent concussions that occur from the head whipping aroung so quickly and many doctors didn't want me to wear the helmet. A lot of them don't even want me to be in the wheelchair (I'm in it only at school) but for safety issues at the school I'm still in it. Yes, I have a wonderful and compassionate doctor. I've had many other doctors also review my case but they haven't offered any other suggestions so far and currently Dr. Grubb is reviewing it to give my cardologist some ideas. I hope things start getting better for you and that you are able to stay safe. Thanks once again!

I've had my condition all of my life but wasn't diagnosed until I was 14. Originally I was diagnosed with neurocardiogenic syncope and my cardiologist believed it would be a simple and easy case to take manage/take care of...unfortunately this was not the truth. There wasn't any triggers to me passing out but gradually my episodes increased in amount and intensity. Many tests were done and all turned out normal besides the HUTT test that showed up confirming my diagnoses. After I passed out while running (I'm a major runner, well at least I was before) I was also diagnosed with exercised induced hypotension. I've tried med after med with NO relief and continued passing out. Start of my freshmen year I was passing out every day and feeling miserable even when I wasn't passing out. SInce I don't always get a warning of when I'm going to faint I've gotten a few concussions. My first concussion was on Sept. 25,2010 after passing out falling and hitting my head at the homecoming dance. Oct.22,2010 I got my second when I fainted and smacked my head against a wall and headboard. Third concussion was on Nov. 17, 2010. My third concussion has caused me many problems. I now have chronic pain in my head (possibly from my condition). I also had lost my memory after my third concussion. I've worked hard to get some of it back but there is still gaps and always will be. When I finally returned to school (about 2months after) I had to be in a wheelchair. During an episode I injured my hand and had to have surgery on it, I still have problems with it so now it is stablized in a cast. I have continued to keep passing out and now recently have been diagnosed with neurocardiogenic syncope coexisting with postural orthostatic tachycardia syndrome. I also got my fourth concussion on Nov. 17,2011. I'm sorry this is so long but I'm hoping to find some people that can relate to what I've gone through/going through! Thanks for taking the time to read this!

I've had my condition my whole life and now that I've been diagnosed for a while I'm able to make connections to some of the things that were happening when I was little. When I was younger my hands and feet would be really cold but wouldn't have discoloring. Now I have major discoloring (definetly NOT cute) this shows up in my feet, legs, thighs and hands. The discoloring will be blueish purple in a wierd pattern. These parts will still feel really cold during pooling which happens often even with thigh high compression stockings.

I have thigh high ones. I don't have a problem getting them on or off. I only wear them in the fall and winter time especially since they can make me feel hot. My stocking have a really nice band so they stay on well but I love when I get to take them off because it feels like I have better circulation then and my legs don't feel itchy.

I've noticed this too! I believe mine may be occuring from one of the meds I'm on. After discussing this with my doctor they switched the dosage and time I was taken it... since this I've noticed an improvement in my symptoms. NOT all of my symptoms of this is gone though. I really hope you start feeling betteer, wish you the best luck on figuring it all out.