micheller

I've read nausea is a common symptom with pots. I think it's my worst symptom and has been my main complaint since this all started. Is there anything that helps??? I've already tried phenagren, zofran, domperidone, reglan. Nothing seems to help at all. It's gotten to the point I sit in the bathroom from about 3pm until I crash at 2am because it's so bad. It's tolerable when I don't eat or drink anything but that's not an option. I eat very small meals, if that's what you want to call them, bland foods, nothing after 7pm. I can deal with the pain and head stuff, I can't deal with nausea.

My GI does a lot of things over the phone which is wonderful! Would be nice if more drs did that. I was offered a job today. It's with the county I live in and have been applying with them for years. I'm a little afraid to take it. It's doing data entry so sitting at a computer for 8 hours a day. I think I'm going to try it out eventhough I'm sore and tired after doing homework for an hour. I just don't want it to interfere with my disability app.

Thanks! I used to do pilates, should get back into it. I haven't tried yoga. I think I'll have my fiance pick up a home video. I've heard good things about the recumbent bike. I had an elliptical but my stomach didn't like the up and down motion.

So it's pretty much a trial and error with the meds. I can't say I'm prepared for that, I'm very sensitive to drugs. I have to wait until Dec to see my neurologist. I hope every day they call with a cancellation. I don't have patience for these types of things! Lol

I voted 1-5 years. It's been a little over 3 years.

What's the best type of exercise to do without over doing it? I lost a lot of weight and would like to tighten/tone but even going up and down stairs gets me so winded. We do go on walks but by the time we get down the block my legs are really achy.

How long did it take you to get approved for disability? I've been reading a lot about beta blockers on here. What symptoms do they help with?

Thanks GingerA! Seems like we are in the same spot. I'm going to school for accounting which I could do at home but I'm sure it would still be difficult. I'm wondering about disability. We've been managing ok without me working but as the kids get older, things get more expensive, my boys are 5 and 7, my daughter is 2 1/2. Even going grocery shopping wipes me out which I used to love.

Tee, I have the focusing problems too. Kind of like when you look at something with crossed eyes. It seems to happen alot when I'm in the car, maybe something with movement makes it worse? My aches and pains are mainly from my lower back down. Feels like I ran for hours. I've also had twitches, mainly in my right shoulder but lately have been happening in my fingers, as I'm typing this my right thumb is spazzing. They don't last long, just annoying. 2 years ago my dr put me on reglan for nausea and that can be a side effect, short or long term. Maybe there's a connection with the reglan since it messes with the nerves. I have not had any others tests except for the ones I mentioned. It seems like it's going to be a long road to get to the bottom of what's causing it. My new specialist is quite interested in my intestinal problems too. I've had troubles since day 1. I spent my first 2 years at Children's because I could not have a BM without meds. I spent 22 years on different laxatives, the only ones that worked were stimulants. I would go weeks, months without a BM. I eventually begged my GI at the time for a colostomy. Sweet relief!! I had no health problems at all after the surgery until I got pregnant with my daughter. Something about girls! Lol Is nausea normal with pots? It's one of my worst symptom. I can deal with it during the day most of the time but I dread going to bed. Everytime I'm about to fall asleep it hits me like a ton of bricks and I have to sit up. I've never vomited from it. I can fall asleep fine during the day so it's only a night thing. I thought it was due to reflux so I have my bed on lifts and pillows I prop up on.

Hey! I was diagnosed with POTS a week ago. I started having symptoms when I was pregnant with my daughter 3 years ago. It was mainly severe nausea and reflux. My gyno said it would go away once I delivered. Instead it got worse. While I was pregnant I could barely eat, only gained 6 pounds, was horribly tired...I think I slept more than half of my pregnancy. Lol Anyway the symptoms got worse after delivery so I was referred to a GI. He ran a bunch of tests which were positive for reflux. I tried all the meds with no relief. I ended up having 3 surgeries over 2 years to correct the reflux. No relief so I was sent to a specialist. My first appointment with him he was asking odd questions like if I sweat a lot, if my hands and feet were always cold, if I had dry eyes. The questions caught me off guard because they weren't the normal reflux questions. He scheduled me for a scope. I woke up in the middle of the scope, he said he gave me enough sedation to put a normal person in a coma. I've had 5 scopes before and that was the first time the sedation didn't work. After I was in recovery he asked me to sit up, stand, walk around to the other side of the bed. A few days later his nurse called and said he wanted to schedule me for an autonomic dysfunction test. I was pretty confused until the nurse explained my jumps in heart rate. I failed all the tests. He has me on sodium chloride tablets for now. I'm scheduled to see a neurologist in Dec. I have to say this disease or syndrome is very weird and it's not what I expected to be diagnosed with when I went for reflux. In the last 3 years, I've had a lot of trouble eating foods that don't make me nauseous so I contributed my symptoms to lack of vitamins. After doing research on pots I have all of the symptoms. It's quite discouraging to read that there is no cure and the prognosis isn't good. I'm 28 with 3 kids so it has been very difficult trying to manage daily activities. I haven't worked since I was last pregnant, my symptoms were too bad to handle it. I'm taking online classes in accounting, almost finished. I guess this diagnosis just flipped my life and my plans upside down. I know there's meds to manage the symptoms but I usually have the rare side effects so I try to stay away from them. I do have a few questions about some things that have been going on and I'm not sure if it's a symptom. For the last 2 months my hips and legs have been really achy and painful. When I sit or put my feet up, my legs throb. Usually a warm bath helps but only temporarily. The more active I am, the worse it gets. Symptom? I also have glasses and last year I got contacts. I can wear them for one day and the next 2 days my eyes feel like they have sand in them. I've tried numerous brands but they all do the same. They can be very uncomfortable too. I've read that some people have eye problems. Would this be one of them? Sorry it's so long! I'm just trying to educate myself and be as prepared as I can for whatever happens next.