derekliz

I dont know if you have low BP issues but read up on Magnesium & Migraines. Also, read about Arginine for migraines. Both can lower BP.

I have suffered from hormonal migraines since I was 10. Can no longer take any kind of triptans aince I am on Zoloft and had seratonin syndrome which dropped my BP to 57/37 (this was pre-POTS) I have taken Arginine with 2 Advil at the beginning of a migraine and stopped it in its track

It is worth reading up on!

Liz

Liz

Hi Bren. My POTS specialist suggested that I try it...that has been alittle over 2 yra ago. He writes the script and faxes it to a pharmacy in Canada. It takes about two weeks for me to get it. If you would like the pharmacy name, pm me.

If you have any other questions, feel free to ask

Liz

I don't believe it is available in Canada. When I order it from the US through a Canadian pharmacy, it is shipped from another country

Liz

You are welcome! My dr mentioned it to me when I saw him a few months ago but he did not know when it would be here....he just said soon. I kept forgetting to look it up but remembered late last nite

Liz

http://www.pmlive.com/pharma_news/amgen_buys_us_rights_to_serviers_procoralan_497005?SQ_DESIGN_NAME=2

liz

Do a search on Arginine. I take 1000mg daily and add more if I have a bp spike.

Liz

Are you on any meds to lower hr/bp?

Liz

Why are you on midodrine and florinef if you have hypertensive episodes? Do you have low bp issues at all?

Liz

I was always told to take standing BP with arm at hear level. So thinks makes me wonder.....when my 2TTT were done, BP and HR readings were done with arms at my side. Are these readings then not accurate?

Liz

I have been on generic Ivabradine since May 2012 and have been cutting my evening pill in half for a 2.5 mg dose. The pill is NOT scored and I cannot locate anywhere whether it is ok to cut the pill and receive an accurate dose of the meds.

Initially when I started the meds, I contacted the international pharmacy that I buy the meds from and they said it was ok to cut. I have read that Ivabradine is sustained release so I am assuming and unscored pill should not be cut.

Anyone???

Thanks

Liz

I was having the same kind of pains....er visits and all normal. When in the er, I insisted that they do more tests so they did a calcium score (which came back 0) and a CT angiogram which came back normal. I was told it was a gi issue. Long story short, my previous pcp told me that pain from the gi area can radiate and feel like heart pains amd wanted me to try Gaviscon or Mylanta when I was having the pains....I did and sure enough....it helped. Went to a GI dr for testing and turns out that I have reflux (not typical heartburn pain) and Barretts Esophagus.

Hope all will be ok

Liz

Is it pretty standard to be dx'd with POTS and not have a blood volume test in conjunction with a TTT?

Do all POTS patients have low blood volume?

http://www.daxor.com/PRquery.aspx?date=7%2f11%2f2013&title=Daxor+Corporation+Announces+Publication+of+%22Blood+Volume+Determination%2c+A+Nuclear+Medicine+Test+in+Evolution%22

An endometrial ablation is NOT birth control..it is very dangerous if you have one and get pregnant. Any good doctor will not do the ablation until you are sure you dont want children, are done having children and you significant other is using protection.

Novasure is one of the brands used for an endometrial ablation and is supposed to have a better success rate.

My dr did my ablation using Novasure in the hospital (outpatient procedure) so he would be able to monitor my symptoms. My POTS specialist faxed him a letter staing I needed 3 bags of lactated ringers, 1 bag before, during and after the procedure. I was under anesthesia for the procedure and would highly encourage that. From what I have heard, it is very painful.

After the first month, the flow was very light and is even lighter now. When an ablation is done, it does not affect your hormones. So if your symptoms are hormone related, an ablation wont help but if your symptoms are from large blood loss, this may help. Good luck!

Liz

For my 2nd TTT, my new dr had me off the BB as the results will not be accurate. The first dr kept me on BB and the results were inaccurate. Good luck!

Liz

I use Northwestpharmacy (dot) com. They have the best prices that I could find. I order the generic and it takes me about 2 weeks to get the meds.

Liz

I am in the U.S. and I take Ivabradine and have been on it since May 2012. My dr faxes a script to a reputable Canadian Pharmacy. I definately would NOT order this medication unless your dr orders it with a script and you are under supervision.

Liz

Suthurngal, the first place I went to was the center in Birmingham. I live in Atlanta and I only went there once and found someone much better in Auburn to treat me. In Birmingham, yes they added klonopin and zoloft to metoprolol. They wanted to start me on wellbutrin but I said no as I had a bad experience with it a long time ago. They pretty much start everyone on the same meds, from what I understand. I am no longer on metoprolol, now on Ivabradine. I take 25 mg zoloft and .25 klonopin....I lowered the dose on both of those. The Klonopin at .50mg was wiping me out the next day. All I would do was sleep.

Liz

Correct...it is not available from Canada but can be ordered from Canadian Phamacies. If you need the name of the pharmacy I order from, send me a privae message

Liz

Jackie, I am sure some doctors would have reservations about prescribing a medication that is not FDA approved. My doctor is the one who suggested that I try the medication as he researched it and had a patient already on it with good success. I would print out information about the medication and present it to your doctor....cant hurt to try!! Good Luck

Liz

Maia, is the water pressure from standing in the pool supposed to hold your kidney in place? Also, were you on any medication to lower your heartrate and did threy work... Just curious and trying to gather as much as I can ao I can talk to my dr and see if they will order a lying and standing scan for me

Thx

Liz

There is a stand up Mri facility in Atlanta..just outside Marietta. Have some reading to do and hoping I can have this test done.

Maia, please keep us posted on everything. I am really intrigued by this and am wondering how many of us may have this issue as well. Will they be sending you to a surgeon next?

Liz

I am stunned right now!! I am going to have to re-read all of this in the morning when my brain is working better. I hope everything will be ok. How wonderful would it be if all of your symptoms go away when/if this is corrected

Liz

I have had my house checked for mold on 2 occasions......the last was in 2011 and nothing .....guess I may need to do it again. we had all of our upstairs ductwork replaced as it was covered in mold and that was in 2011 then I did the mold testing....so frustrating....was feeling great now bad again

liz

Long story very short....was at the beach for a week...no tachy...even lowered my meds due to hr being 60 when standing. Came home..hr 116 standing....increased meds. Went to two different stores on two different days..hr low 70's standing but is 116 @ home before leaving and when returning. What could this be....so baffled?

Thx

Liz