lindseybee

How do you all go about making friends? When I got sick, I lost pretty much all of my friends because of my "flakiness" (really nice of them.) While illness is a great filter for jerks , I'm still quite lonely. Any advice for someone wanting to make friends who are understanding of their illness?

Strange! I had low potassium right before I got POTS too.

Does anyone else get really bad charley horses after physical activity? I find that if I walk around or push myself more than usual, the next day I am dealing with some intense pain in my legs. What helps with this? I've had a vitacoco and some water but I'm still achy.

Ah thank you both! Time to look for low carb options then!

Lately I've been getting tachycardia about ten minutes into eating. It last for about a half hour. Does anyone get this? I am thinking it's related to blood sugar or blood rushing to the stomach, but I am not sure. What could I do to help this?

dani do you take any supplements? i used to have this issue. it went away completely after i started a vitamin d supplement. magnesium is a great help too.

I'm so sorry I can certainly relate to this feeling. I had some numbness and tingling in my face/scalp. It's the worst. I constantly feel disconnected from my own body.

ty sue! i will be sure to ask her. i've looked over the symptoms and they make sense.

I keep having these moments where it feels like my head is going numb and my heart starts to race really fast. It feels like I'm having a stroke, but I'm obviously not. These moments last about 10 seconds at the most. They're terrifying. I am fully aware of whats going on. My hands usually shake afterward, but I'm not sure if that's because I'm scared or what lol. Do these sounds like seizures or adrenaline surges to anyone? Does anyone have anything similar?

That makes a lot of sense! I can't tolerate HFCS in most things. The electro mix doesn't have any I don't think!

I use emergen-c electro mix. The only downside to it is that there's no sodium in it. There is NO SUGAR though, which is awesome because Gatorade makes me hyper.

Interesting that you mention YAZ. I believe it's what caused my POTS. I started having symptoms exactly a month after I quit.

I'd love to know what he says about it, if you don't mind! I've asked several doctors about it and they've all shrugged it off. So frustrating.

Yes. The pain is very similar to what you described, except mine was right under the jaw.

At the onset of my POTS, I had severe neck pain in what felt like my carotid artery or vagus nerve. I also had low potassium. Once I fixed that, the pain went away. It was diagnosed by a neuro as trigeminal neuralgia, but since I haven't had the pain since, I don't think I have that? Has anyone else experienced something similar?