I've been diagnosed with IST and POTS for 2 years now (I'm 18) and have had symptoms since I was 10. My electrophysiologist said the rapid hormone changes of early puberty was likely to blame. STORY: My main symptom is pre syncope after eating/standing and chest pain that radiates down my left arm and up my jaw (scary!) I was "diagnosed" with reactive hypoglycemia without any testing when I was 10. At 16, I took a turn for the worst. I began fainting and having chest pains. I was in my GP's office at least every week. I was diagnosed with the following: Pleurisy, bronchitis, pneumonia, costrochondritis, anxiety, tested for lupus, and finally they told my mother in private that they thought I wanted attention and was faking it. No one ever noticed that every time my HR was over 120. Finally, my HR was 180 in the doc's office and none of the nurses could believe it. A new GP came in and looked through my records, declaring something was seriously wrong. I was sent to a local cardio, who said me had never seen a higher consistent resting HR in all his time in someone this young. I was 165 baseline and 220 just walking on the tredmill! He sent me for a second opinion at the only electphysiologist that would take minors, who was 150 miles away. There, I was diagnosed with IST and POTS. I was prescribed 2.5mg bisoprolol, which I was breaking through. I now take 5mg bisoprolol and 2.5mg midodrine to raise and level my BP. So, does anyone else here suffer from chronic chest pains? I have had every test in the world and all they can find is that it comes bundled in the POTS package with a bow on top. Also, (TMI) but does anyone else get bloating/gas and increased sex drive on midodrine? How do you manage? Does or can anyone take nitroglycerin for the pain?
