Jump to content

hholmes13

Members
  • Posts

    203
  • Joined

  • Last visited

Everything posted by hholmes13

  1. Does anyone have any issues with exercise intolerance? All of the doctors have said over and over again to me how important it is for me to exercise in order to feel better. However, each time I exercise, I feel awful the rest of the day. The following day, I end up extremely light-headed and nauseous all day and have a difficult time standing up for very long. I had an exercise stress test, and they had to stop the test because I got really dizzy and came close to fainting. It turns out my bp doesn't increase as much as it should with where my heart rate gets to. As the test continued and intensity increased, it started to fall. It has been recommended to me that I do no weight-bearing exercises and stick to things like a recumbent stepper or cycle. (and of course hydrate, hydrate, hydrate! ) I've been following their directions for intensity and time, but it seems to be making me feel worse rather than better. It's tough because I've always been a runner...I miss being able to exercise how I used to. Has anyone else dealt with this? If so, did it get better with time or does exercise always make you feel bad? Thanks! Heather
  2. I can definitely relate to many of you with the exhaustion. I can't believe some of you have been dealing with this for such a long time! I've only been dealing with this for a little over 3 months now and it gets frustrating. I feel tired all of the time, regardless of how much I sleep/nap. My very worst days get so bad that even standing is difficult because I feel so weak/tired. I feel like I could just sleep for a week straight and still not feel rested. I was very active before all of this started (I was training for a half-marathon), so I get very frustrated not being able to do the things I enjoy. The strange thing though is that although I feel exhausted, I have a really difficult time falling asleep some days. It's almost like I'm so tired I can't sleep or when I do, it's very restless. Does anyone else get this? Heather
  3. Hi! My name is Heather. I'm 28 years old and live near Rochester, MN. I've been recently diagnosed with orthostatic intolerance. My doctors originally thought it was POTS because of my tilt table results, but a neurologist who specializes in autonomic dysfunction does not believe that to be my problem. He believes I have excessive blood pooling and that my body just won't keep my blood in my head when I'm upright. I'm currently on Midodrine which helps ease the symptoms some, but I'm still nowhere near where I'd like to be! My symptoms literally came on overnight a little over 3 months ago. I haven't had any kind of a virus for a very long time. I deal with excessive fatigue, light-headedness/fainting, brain fog, headaches, and major nausea/loss of appetite. I never knew how debilitating this kind of illness could be! I'm still learning my limits and how to deal with this. It's so nice to find a network of people all dealing with the same thing. Even though I know it's a real illness, it sometimes makes me feel like I'm crazy. Anyway, I look forward to meeting you and learning more about dysautonomia and how to live with it!
×
×
  • Create New...