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Katybug

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Everything posted by Katybug

  1. I have not taken licorice for POTS symptoms but did use it a few years ago as part of my treatment for GERD symptoms while being treated for tick borne illness as I was on heavy doses of antibiotics. My Lyme doc used a combination of traditional and alternative therapies for treatment and taking licorice tabs was one of the ways we controlled my GERD. That was well before my POTS diagnosis but I was starting my POTS symptoms at the time and I have to say that I often felt an "all around" sense of wellness that my doc and I couldn't really explain when I would take my licorice tabs. Maybe I was helping my undiagnosed POTS! I would say that if you have GERD, it wouldn't hurt to see if you can get some relief for that from the licorice. I do remember there being a warning on the bottle regarding taking licorice for people with heart conditions so you may want to look that up before takng it.
  2. Hi Ernie. I have POTS and severe migraines and have lots of visual disturbances between the two syndromes. I don't know if you would call them hallucinations or not but one second it looks like something is there and the next second its gone. I have had more than one doctor suggest that I had mental issues before my POTS was diagnosed. It is good to know your nephew has you for an advocate. It is my understanding that a significant feature of schizophrenia is also hearing voices which you did not mention he experiences. I agree with the other members that you should seek at least a second opinion if not a third or fourth. Labeling a teenager with a mental illness is no small matter as you said and neither are the drugs that they will put him on. Good luck to both of you.
  3. Hi SJSB! I was diagnosed with POTS by way of 2 TTT. I had severe pre-syncope symptoms on both tests although I did not pass out on either test. I have not had my license taken away because of the diagnosis. I think the laws dictating what diagnosis doctors have to report to the motor vehicle administrations vary from state to state. I'm in Maryland for example and POTS does not have to be reported but narcolepsy (which they thought was a possible cause of my symptoms before finding the POTS) does have to be reported. I totally understand your general fear about the TTT. I was really scared too when I walked in for the first one but I was determined to find out what was wrong with me and if it meant feeling 45 minutes of knowing my symptoms were coming so that the doctors could finally have a clue how to treat me it was going to be worth it and it was absolutely worth it! My second one was conducted by a specialist in POTS and he did it a little differently but I was told before both of them at the two different facilities that if I wanted them to end the test and lay me down at any time all I needed to do was say so. I was also never left alone at either facility. I got the impression that this was common practice but if you have questions about how your procedure will be handled ask ahead of time so you can help lay some of your fears to rest. Good luck!
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