Jlynn

I talked to my nurse about this, and she said that my doctor will only give me 3.5mgs. I think thats way too high to be starting at., esp with me being sensitive to things. I'm gonna try to talk him into starting out lower if he wont I guess I won't be able to take it.

checked out the site I do have all the symptoms of Addison Disease , including darkened skin. one time my aldosterone level did come back at only 1, but I guess my doctor didn't think much of it, because the other time it was tested it was 7. I'm not sure what im going to do but this low bp all the time is making me feel really bad, thinking about asking for flucortisone, but I've heard that it has a lot of side effects

LAtely I've noticed my hands are getting a brownish color to them since taking my bp more often, I usually only take it 2-3 times a day they are also getting a lot colder , has anyone ever experienced this before? (i've stopped taking it for a few days and they stayed the same brownish color)

mine was high too,I don't remember exactly what the numbers were though

I have probable ms,and was wondering if anyone here has taken ldn with that also has low bp? I have read that it is safe, but the main thing it does is release endorphins, which in turn can lower bp.. if anyone has any experience with this please share

thats how I am too.. usually after I eat a few bites I am full, but I try to make myself eat 6 small meals a day just to keep my bp up

They need to do a lot more testing then MRI with one lesion to call it MS. I was just reading about that a few days ago. I would try for a second opinion if you feel they are wrong. But you can also have both MS and Dysautonomia together and its not uncommon. I have one on my cspine and a bunch of little ones on my brain. but my low bp started months before any lesions so I wasnt sure if low bp itself could cause them or not

I was told that I have "probable" ms, that is affecting my nervous system, but I'm just wondering if anyone else has any brain lesions that werent diagnosed as having ms,and have Dysautonomia ?

yeah I think I might have had a little more energy for a awhile but other then that it didnt do anything. I'm going to try the full dose tomorrow. my chest did hurt on and off but its been happening the past few days more so I doubt its the medicine.

I'd say if you have a good hospital to goto, go. but I was already sent home with mine at 80/40..which is way too low. the lowest its been at home its 50/30.(that could have been a mistake with the machine too, because it got higher the next reading) In my experience no one takes low bp seriously. but I hope they can help her * I was told if my heart rate gets to be below 50,that is a reason to go into the er, so maybe you can call an on call doctor and ask*

Just wondering what everyone elses salt intake is? my doctors all keep telling me to increase it, but no one has ever said how much. When I eat too much,or plain salt I feel short of breathe, but usually on foods it doesnt do that. everything I eat is processed so it has a lot of salt, and I use between 4-6 salt packets a day that have 11% in. I also drink one gallon of water a day. is this enough salt? I have had people tell me that you can overdo salt if its taken in excess *on labwork that comes back my sodium is always normal, but on the very low end of normal**

well, I honestly think I would have felt better drinking a starbucks and having something salty to eat lol it didnt really do much if anything an hour after taking it my bp was 89/60, I know your not suppose to lay down with it but I was pretty sure it was low before I did. I think tomorrow I'll try a half of one, then after that a whole one if that still doesn't work I'll try to rely on diet because its seems like it didn't do much at all--if anything- I've been told that I had add before maybe I can just take ritalin for it (took 5mg and it was still 80/40 so maybe I need a higher mg of ritalin) I also have raynaud's so I gotta watch it doesnt get worse on those. sorry if my replys are a bit scattered lol its because my thinking is really foggy atm Does anyone know any vitamins that raise it?

I've had a work up like that too, so most likely it will be ok. I am taking half of 2.5 to start with in a few mins took a quarter of one and my bp is now 141/92 and it didnt have time to hit my system i think its because im worried about it before i took the medicine it was 90/60 but that was laying down

I've had a work up like that too, so most likely it will be ok. I am taking half of 2.5 to start with in a few mins

I always get really dim vision when my bp drops too low, usually when I eat something salty It gets brighter (but doesnt last long), it also feels like at times I can actually feel the blood moving in my head when its super low. Does anyone else experience this?

Thanks, I will look into getting that next time I try the stockings

No not taking any meds as of yet. I did try a small peice of 10mg midodrine once a few months back and it shot my bp way too high so I'm going to break a 2.5 mg in half tomorrow and hope that it helps, I think a lot of it not working the first time was me being worried, over taking a new medicine. I've also heard that it can lower your heart rate, and there has been a few times mine has dropped into the 30's on its own.. so that worrys me a bit as well, but im going to try it anyways. I've notice when it gets under control I feel a lot more normal, so I really hope it helps

thanks everyone.. I felt really bad today, I couldnt stay awake hardly at all, I think I'm gonna have to try the midodrine again. I've been trying to do it with food alone but I don't think that its helping enough. has anyone taken it with a small heart murmer? I just found out I had one not too long ago, I also took ritalin for years without a problem, so I didnt think I'd have one with this medicine but then again when I drink high amounts of caffiene my chest hurts from it, so maybe I will bring it up/ask my doc before I take it

My blood pressure has been terrible the past 6 months, and I've probably gained 30 lbs just the past 2 months because I've noticed eating helps it, but it usually only ever helps a half hour to an hour tops.. (the only food that helps longer are lunchables and I am not sure why, the only thing they have more of is a lot of protein 20g, ) but to feel "normal" I"d have to eat 4-6 a day, and that adds up to over 300$ a month.. lol I can't afford to keep eating like that. Does anyone know any low fat foods? or foods that will raise it but won't cause me to gain a lot more weight?

no I haven't tried the hose yet, well I did wear over the counter kind and they dont stay on, so my next step is to go and get fitted. hopefully that helps some

I know what you mean! I've been experiencing the same thing for months now. The doctors I am seeing don't know what they are doing, so they pass me on to other doctors who play it off , or send me to other doctors who do the same thing. It is beyond annoying

Hi everyone, I was diagnosed with probable MS and I'm told that it is effecting my atomic nervous system, and that is why I keep getting low blood pressure. It usually runs 80/40, to 100/50 and normal ranges at times. the lowest ive ever seen it was 48/30 (I really hope that was a mistake but I'm not sure) I've had memory lapses with my bp dropping so low, sometimes my own house looks different to me. has anyone else ever experienced this? I was wondering if there is anything that I could change in my diet to help increase it?( I add extra salt to just about everything) Also I was put on midrodine a few months back, it was 10mg, but since I am sensitive to stuff I broke it up into quaters and took it, it shot my bp way up to around 200/150 when standing. .. This time they called in a lower mg 2.5 that I am probably going to start in a few days but I'm worried its not going to affect me right. there are times when I'm thinking of something, and almost 2 seconds later question what I was thinking/saying I've also seen flashes of people when its too low. I'm only 28 so this is all very scary. I brought this all up to my doctor, who didnt really say anything, but I seriously think I have brain damage, or the start of dementia from my bp. anyone who has experience with this please help!