Yolaclover

Naomi, are you feeling better?

Thank you Jackie and Northern Darlene! I will have to see my cardio and see what he thinks, this med was prescribed by a psychiatrist. thank you!

Guys, I was diagnosed with clinical depression about a month ago, I have been on lexapro, it has helped so much with my depression and my horrible headaches...but....I'm so lightheaded, especially at night, did any of you have this issue as well? I was wondering what helped for you? Thanks!

Thank you Issie, it's so odd because my other B's were good, wonder if it was some kind of error? thank you for posting ramakentash and Issie. It's so weird, I always feel "good" just very lightheaded most of the time.

No, but it is one of my biggest fears!

I recently had some blood work done, my B6 was low range was 5-50, mine was 2

and my IGE was high, range was 0 to 100 (100 being very high) mine was 145

What does this mean and could it be a reason why I'm so lightheaded so often?

Thanks!

yes, very often!

lexapro!

yes

None! Two kids.

It makes me feel very un-potsy, love it

Yes Naomi I sent my application, they told me to send my disk with a new copy of the application, I did, they sent it back, they cannot help me.

It was horrible! Florinef helped me with this. I don't get it much any more but last night i felt pretty horrible.

Sitting and lying down were very bad for me when my POTs was bad. Like Potsie007 I felt like i was passing out in my sleep.

My POTs got a lot better maybe it was the gluten free or the going off zoloft, that seems to have hlped, I think my body adjusted to something that is till wrong with it but the POTs part is better.

Head pressure, head pain, mostly near base of skull, my POTs is so much better but the head stuff is getting worse

I was at work looking down at a device, looked up, got very lightheaded, felt like I was going to pass out, life has been complete **** since then, no illness whatsoever for 37 years before that (except minor stuff)

Ugh, hate to hear this, you were coasting for a while there!!! Try some of these things people mention and hope that this is a total fluke and not another long relapse.xoxxoo

I have been testing very strong for celiac (blood tests) but the other tests were mostly neg. inconclusive. I have been referred to a celiac guru in nyc and will let you knoww hat comes of it. Dr. Weimer at Columbia who did my recent autonomic testing seemed to think the celiac had some part in my autonomic issues (that have improved greatly since going gluten free)

I get top of head pressure too, have had this issue since POTs came into my life. BP is way better but the pressure keeps coming back!

So, i recently had a test for csf leak. It was not a csf leak. I also sent all of my MRIs to Chiari Center. Not chiari.

It helps my head pain (like a nerve pain) and it helps me sleep. But it often nudges my BP too low plus the gabapentin generic has gluten which does not work for me. I am quitting it despite liking how much it helps me sleep and stops my pain

I get worse when i sleep up high! I sleep on a low pillow, getting up to use restroom or for one of my kids is kiss of death, get very potsy after getting up and trying to go to sleep again. I miss sleep!!!

Glad your husband decided to stick around Elegiamore I am not sure what helped. I still have bad days. I still have a lot of head pressure at times. I get this weird nerve pain at base of skull. I think time passing has helped, gluten free I suppose and well, I don't know I am scared to say I feel good because the next thing you do...you don't, lol!

Anyway, miss you all.

C

So, I just wanted to say Hello. Had some autonomic testing on Dec. 1st showing NO OI, POTs, autonomic dysfunction. Yay! However. I continue to struggle with head pressure and head pain. I take gabapentin which helps, but always seems to trigger the "feeling of passing out whilst sleeping" I hate that!!!

Otherwise I'm trying to live, working in my new job teaching 1:1 in a private school, raising my 4 and 5 yo and trying to not let the symptoms get to me when they pop up. Weimer, the Dr. at Columbia Presb. in NYC where I did my testing, seemed to think that the POTs was triggered by the Hep. A or the Celiac (which by the way has yet to be 100% confirmed despite every test known to man so GI is sending me to Peter Green, ironically, also at Columbia Pres.)

That's my update, love you guys

And please tell me how you are!!!!