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About louloutinks

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About Me

Mum to my adorable 10 year old with autism whom I love very much. It can be hard dealing with my illnesses especially as my son has difficulty sleeping, as I may only get 4 hours sleep, which makes things even tougher!

I have EDS, chiari malformation and pots. I live in the UK and am currently taking florinef for pots....not making much difference though lol!

They say we need spoons, to get through the day.....so far I have also gone through forks, knives, spatulas, can openers...heck - the whole cutlery set and some lol.

Speak to you on the boards sometime maybe ;)

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