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nycpots

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About nycpots

  • Birthday 02/10/1971

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    New York, NY

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  1. I have POTS and hypermobility with tons of back issues (scoliosis, bulging discs, stenosis, etc.) and a lot of other misc. health problems (just dx'd with a Mast Cell Activation Disorder).....Several doctors have suggested I might have Ehlers-Danlos syndrome. I feel like all I do is go to doctors and I'm wondering how much to prioritize getting tested for this....will a dx change my treatment for POTS and significantly alter other things I should / shouldn't do or take, medically speaking? Any advice would be much appreciated....
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