KareBear

I think any parent with this illness or any chronic illness deals with those feelings of guilt. We put more pressure on ourselves than others do though so I think it's important to remember that what your kids will remember most is you being there for them when they need you and you can do that even more now! You can take the time now to communicate daily with them and see how they are doing. Give advice. Just chat and spend time together. You can now give them your full attention without being distracted. That will mean everything to them. The times you share together now will be more cherished and meaningful. Emotional support and love is what is most important and that you can still give! When they have events you cannot attend, maybe have them come home and tell you all about it and still share those moments. Tell them how excited you are for them or how proud of them you are. I honestly think it will be just as special. We put so much more pressure on ourselves, and children are understanding and adapt. You didn't ask for this, so dont be too hard on yourself

If you are having increased heart palpatations you may need a cardiac doc to check into that. Have you had a holter monitor recently? Especially since you are experiencing more tachycardia too, it would be a good idea to get it checked out. As far as the eye twitching, the most common causes of that are: Alcohol intake Bright lights Caffeine intake Fatigue Irritation of the eye surface or inner eyelids Lack of sleep Smoking Stress Wind I'm sorry you are having all this happening, that's the last thing you need around the holiday's right? I hope you do talk to your doc and find out the causes of the increased cardiac symptoms. I dont know much about kerosene usage since I live in a warm climate and dont use those heaters but maybe some other northerners will know more. Feel better soon!

Do you think it's possible that the initial decrease in fatigue was the Lexapro (which caused more fatigue) leaving your system? Having only been on the Prozac a week I would think you may need more time to adjust possibly. Every time I took similar meds my doc always said it takes 2 weeks before you may notice a difference or before you can tell if it helps. If you are tolerating the med ok then maybe giving it a little more time is worth a try.

Chaos, that would make a lot of sense. The meds do work well controlling my vitals but whatever underlying problem I have is still there of course so the meds more than likely mask things. Good point! Thank you!

I dont remember the exact amount of time it took to adjust to propranolol but I do remember my doc feeling confident it would help me and he told me to not give up on it, take every dose on time, and give it at least 2-3 months. It made my symptoms as far as low bp, dizziness, and near syncope much worse at first and I could barely get up for anything. But, I did adjust to it I believe around 6-8 weeks after starting and it has been the best med for me. I'm glad I stuck with it. It of course doesn't help all symptoms but helps the cardiac stuff. No more bp drops, controls heart rates, no more chest pains, helps with the chronic headaches, even the shakiness and nervousness associated with tachycardia are relieved by it. I take 40mg 3xday. I have been on it for a couple years now and it still works just as well for me. I hope you and your doc find one that works for you too!

Welcome to the forum 1kate1!! Sorry to hear you are having these problems and were diagnosed with dysautonomia too. I tried many beta blockers over the years but never tried Atenolol though I do know others here take it so maybe they will give some input. I finally found propranolol that works great for me. It took a little adjusting to it at first but it controls my heart rates wonderfully and my bp no longer drops low like it used to. So, that's the med that helps me most. If the med is bothering you, you may want to let your doc know so he/she can decide if you may need a change especially since it shouldn't increase your heart rates. Is your bp dropping lower on the med or better? If the med is dropping your bp it can make your heart rate rise to try and compensate. Starting new meds is always hard.

It may have been from sitting up too long like Lyla said, I was trying to watch a movie with my family. I did not measure my BP at the time but should have and thought about that later. I too have noticed even if my vitals seem normal I still get many other symptoms so controlling those is only a small part of our issues. Thank you all! It is better today so far

I've noticed this evening that I feel like I am having the typical tachycardia symptoms while at rest, jittery, unable to relax, the feeling like I have to constantly move my arms/legs, fast heart rate feeling in chest, headache, shortness of breath, etc. The problem is my always accurate heart rate monitor shows rates between 85-95 bpm which normally dont give me these symptoms. I normally get them when I get rates 120 and over. Does anyone else ever feel like they have tachycardia episodes when they actually dont? If so, do you know why?

The docs never mentioned a possible cause of mine. They didn't seem concerned with that for some reason. It does run in my family though not as severe as my case. My other family members are functional.

Hmm, I cant take tylenol because of all the pain meds I am already on high doses of and the affect on my liver but do notice that 600mg of Motrin helps my orthostatic issues which is also listed in the "what helps" section of this website. (Though not this particular strength). I usually take it only when I NEED to get up and cant, and even then only once a day.

I wish I could play video games but it stresses me out way too much lol. The one time I tried to play Call of Duty on xbox live, my friends were trying to teach me how to play and things were getting hairy for our team so they stuck me in a corner and said "wait right here a minute and shoot anyone who goes by". So I waited. A teammate (not a friend) stood right in front of me and shot me!! I was a bit confused. Apparently it is highly frowned upon to hide in a corner. Well it made me mad and I never played again lol.

Hope you all had a great day with family HAPPY TURKEY DAY!!!!!!!

Faintinggoat, it took me over a month to adjust to propranolol but my doc encouraged me to stick with it and not skip a single dose despite how horrible it made me feel and I have to say it is the one med that has helped me the most! I take 40mg 3xday. The first 4-6 weeks are so were tough, it made my symptoms worse and couldn't barely get up, but then suddenly it was like a switch flipped on and and my body adjusted to it and it has helped more than anything else. Helps the heart rates stay consistent, no more chest pains, and my bp doesn't even drop as low as it used to anymore. Of course I still feel horrible and unable to function like a normal person but it made a big difference. I feel like my cardiac symptoms have leveled out and are more normal. I hope it helps you too. It's the first beta blocker that has helped and I tried many.

I've been unable to work for about 5 yrs now and dont see any sign of being able to work again.

When I had both my endoscopy and colonoscopy I not only didn't feel a thing, I slept through them I guess and have no memory of any of it whatsoever.

These are the usual causes of eyelid twitching: Stress Tiredness Eye strain Caffeine Alcohol Dry eyes Nutritional imbalances Allergies

If you suspect it's your gallbladder, a trip to you regular doctor and an ultrasound should give you an answer! I hope you feel better soon! Take care!

It can. Do you have pain when you eat? Especially fried or fatty foods? These are the typical signs of a gallbladder attack: Moderate to severe pain under the right side of the rib cage Pain may radiate through to the back or to the right shoulder Severe upper abdominal pain Nausea Queasiness Vomiting Gas Burping or belching Attacks are often at night Attacks often occur after overeating Pain will often but not always follow a meal with fats or grease Pain may be worse with deep inhalation

It did say that if you need the testing you can appeal. Now whether that does any good or not i dont know.

The science behind why some feel better during pregnancy is because of vascular changes. When you become pregnant your blood volume expands, increases to help support the pregnancy so essentially you have more blood in your body which helps increase your bp.

Wow, that is absolutely horrible! I had sedation with no problem and would have sedation again if I had to but now after seeing your post I know I would chose sedation again no matter what !! That doesn't seem humane! Did you tell them how angry you were? That's ridiculous, no one should go through that. I am so so sorry you went through such torture.

Great info! Thanks for the idea

Mine is manufactured by Mylan Pharmaceuticals