KareBear

Thank u Corina, ur too kind! I'd love to know what he says. Dont go out of ur way though, I know u will have a lot on ur mind at ur appointment, and I hope things go well when u see him Monday. On a side note, I can see many people here seem to have known each other a while I'm kind of an outsider so Thank u for ur welcome!!

I know what ur explaining, I have the same thing but thought it was just me. I never asked my docs what causes it but take muscle relaxers to help and it helps some but not completely. I always assumed it was lack of blood flow to muscles due to abnormal circulation but now that I read katybug's post that's an interesting thought.

I have severe problems with body temperature regulation. Moving around worsens it, like walking to another room in my house or anything that causes heart rate to inrease higher than my resting rate, and I get super hot and sweat a lot. As soon as I lay down I start to cool off immediately and stop sweating. Does anyone know of anything that helps this? It's miserable feeling and only laying down seems to help. One minute I am cold and need a blanket and the next I need fans blowing on me constantly. I am never a happy medium and comfortable. The other temperature issue is I get frequent low grade fevers especially if I am more tired than normal from lack of sleep (I have insomnia bad). Again, nothing seems to help this except finally getting some sleep. Does anyone else have this problem? Does anyone know if it's dysautonomia related or not?