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MattT

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Everything posted by MattT

  1. Thank you for posting this. This is new information to me, and posts like this give me hope as well as ideas for moving forward
  2. Hi everyone, I know some of you have seen Dr. Yan-Go in Los Angeles. I was wondering if it was difficult for you to get in to see her, and how you got an appointment. Did you need a referral? I don't really have a sympathetic GP, and while I'm essentially positive I have dysautonomia of some sort, I've never been officially diagnosed with anything. I was thinking of trying to go see her for testing or advice or I don't know what. Thanks!
  3. First, have you thought about what would happen if they actually treated you in the E.R? They are going to treat you with regular doses of vasoactive drugs. Drugs you are hypersensitive to. If you go in there with super-low blood pressure and they give you a full dose of dobutamine or something it might kill you outright. Even though it ***** to be treated like an idiot by the doctors, I think your situation is ideal in some ways. You get to sit in the E.R. under observation for a while in case something serious does happen, but they aren't treating you with medications that could be very dang
  4. I am seriously considering trying helminthic therapy. This is an old thread, so I was wondering if anyone has had any experience since it was posted. Seems doubtful, but I thought I'd ask. If I decide to go for it I'll keep you updated on what happens.
  5. Hey Dunky, you have my sympathy. I'm a 28 yr old male, and I have almost exactly the same symptoms as you (my blood pressure is rather high though), so I totally understand how you're feeling. It ***** to be in the prime of your life and have everything ruined by this disorder. I started having problems around 6 months ago, and I've been having the same heart issue as you recently: weak beats and a slow rate that won't go up. It's lead to almost passing out a couple times and I'm scared it's just going to sort of quit. 5 months ago I could see it beating out of my chest all the time though, wh
  6. Thanks for your well wishes! That may be the best option in the end. I've thought of possible SA node issues, though I'm not sure if that's the problem. Even though 50bpm is low, it shouldn't be causing fainting, yea? It never got any slower than that, even when lying down, just weaker. But of course there's no way to know without having it checked properly. Normally I'm between 60 and 80 at rest.
  7. Hi all and thanks for your responses :-) I was checking my pulse on the left side only, and I believe lightly enough to prevent problems. I can't think of anything in particular I was doing that would have caused a vagal response. I'm pretty sure I wasn't holding my breath at any rate. My stomach was probably full (I've been having problems with it not emptying properly), so that may have been an issue. I haven't had a holter or event recorder. I had ekg/echo/stress several months ago, which were relatively normal at the time. I have a neurologist appointment this Thursday and I'll talk to him
  8. Hi everyone. I'm new to the forums, and though I don't have an official diagnosis, I'm pretty sure I have some kind of dysautonomia. I've seen a few doctors and it seems like nearly everything else that matches my symptoms has been ruled out. A couple nights ago I had a very frightening experience. I noticed that my pulse was feeling slow and weak (I can feel it most of the time) and my hands were looking grayer than normal, so I checked it and it was around 50. I decided to get up and move a little, but even with standing and walking around the house it didn't get above maybe 55, and moving w
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