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About aunie

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    Advanced Member
  • Birthday 03/06/1983

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    Love Books, Movies, Photography and anything new and exciting!

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  1. I had a complete hysterectomy on April 30th of this year, due to pelvic congestion and many other nasty symptoms. We decided to take both my ovaries because both ovarian veins were dilated very large, even after embolization. I also felt like I was on a roller coaster every month with the hormonal ups and downs, and it was causing the POTS to go up and down too. I did pretty good until day 4 post op and then I got a huge wave of anxiety, insomnia, almost manic type episodes, along with joint pain and hot flashes. I am so sensitive I think to any changes in my body, so even just after few d
  2. I used to get vertigo alot. Now only every once in awhile. I had a tube placed in my left ear and it has helped tremendously! I have had it for two years and it needed replaced last year, during the time it needed replaced, I noticed my symptoms coming back and getting worse, New tube and symptoms went away again. Banana's- Embolization worked for about four months. My body just decided to make the veins larger, and the blood re-routed to other varicose veins in my pelvic area. So I got more pain in different areas. It got so bad before I had my hyster that I was literally tipping the be
  3. You are not the only one dealing with being bedridden, that's for sure. I passed out in February 2011 and ever since then I have steadily declined. Currently I am pretty bedridden. I do get up to use the bathroom and shower in a chair. I do from time to time try to get up and grab a quick bite to eat when no one is home ( I mean real quick ), but for the most part I am in bed. I don't even sit up much either. I have Pelvic Congestion and it greatly contributes to the pooling, but I recently had a hysterectomy and it has improved my blood flow. I use to get dizzy even in bed while lying
  4. I have this too. I find that it seem's harmless as well, just annoying and it was way scary when if first started happening. I also think it's some weird dysautonomia thing.
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