AdrenalMom

Thank you Chaos--that synopsis was helpful. I wish I had paid more attention to the heart rate and timing of everything but I didn't expect the test to produce any usable data. And I'm completely new to dysautonomia. M

Next time check your BP maybe, if you can, and see what is going on. Sounds like a fight or flight reaction. M

I deal with hypoglycemia sometimes and it's not enough, in my experience, to just eat sugar. You need protein and fat too to prevent another crash. So when I am low, I eat something sweet (just a small amount 1tsp of jam for example is more than enough) and then have a slice of cheese or some meat. Also I eat regularly even if I'm not hungry; not a lot, just enough to keep my blood sugar stable. For a while I carried those Smartie candies around, only 8g of sugar, as well as nuts for emergencies. I think you only need something like 2g to raise low blood sugar. M

Hi. I'm new and I just had a tilt table test. I am also on corticosteroids for either steroid withdrawal or adrenal insufficiency (it's a long story, just know I am basically stuck on steroids for the moment and whether or not I ever wean is up in the air). I'm trying to make sens of the TTT and was hoping for some feedback from those of you who know this stuff better than me! 1.My heart rate definitely elevated quite a bit but not necessarily right away. I don't know how long into the test it went up to 117, but it did shoot up with my BP. Does it have to go up in 10 minutes for POTS??? 2.I did not pass out, not technically. I had a lapse where I lost time, faded and was disoriented, but not a true state of unconsciousness. The BP went from 141/89 to 128/59. That was brutal. I was short of breath, couldn't think straight and I didn't dare look at the floor for fear of passing out. The lines on the EKG monitor went all squiggly too. After that drop my body went into overdrive, my BP skyrocketed to 150/101 along with my heart rate at 118. I began to sweat and feel jittery. Very odd. I had another drop too, but the diastolic (bottom number) was still relatively normal (can't remember the exact number, 80 maybe) so I didn't 'feel' it as much. For me, it's when the diastolic is in the 60s or lower that I start to have problems. 3.When I laid down my BP was good, 128/76. When I sat up, it started out good and then began to climb. Don't know the heart rate though. I have no idea what to make of this. Could it be POTS? Does the HR have to go up in just 10 minutes or no? Or could this be some other form of dysautonomia? I am a little confused and trying to make some sense of the experience. Thanks for your help. M