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dizzycoco

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Everything posted by dizzycoco

  1. Thanks so much Dianne! If I may ask what type of non-medication approaches have worked for you? I'm moving towards more none medication approaches as of late (high salt, reiki, small meals, high water intake) and looking to try anything I can! Thanks! CoCo
  2. Hello All! This is my first time posting but I have been reading and am glad to know I am not alone! I developed POTS after a very minor surgery back in June and have been dizzy ever since. I'm still working full time and that is a small miracle. Overall I think that it is slowly getting better on it's own as I know I am less dizzy then I was 30 weeks ago but.... I have tried Metroplol, (did nothing) Bistolic (gave me severe shortness of breathe) Midodrine (I loved it! Was working so well until I got continues chest pains) and finally Flourinef (my dizziness which is my main problem got worse) and now my doctor has given me samples of Pristiq which is a SSRI/SNRI. The side effects are kinda freaking me out and I'm hesitant to take it. I'm not having any mood issues and I'm so sensitive to meds now (all of the above I took half of the smallest dose possible) and this drug you can not cut. Has anyone taken this? What were your experiences with it? Also, I live in Tucson and I had my tilt table in Phoenix at Mayo but they are not on my insurance and I haven't been back. Does anyone have doctors they would recommend in Tucson? My neurologist has never seen POTS without syncope and has only seen a few POTS patients overall. Has anyone gone to the U of A integrated medicine clinic? My doctor just seems at a loss of what else to try and I thought I'd see if any doctors in the area had more experience. Thanks and let's hope for a happy and healthy New Year for us all!
  3. Also miso soup, pickles and olives, cottage cheese and turkey jerky plus of course poweraid!
  4. Hello All! I'm here in Tucson and am newly diagnosed and have been to Mayo for testing and another doc up in Phoenix but have had my primary care here in Tucson and my neurologist is just about at the end of list of ideas of how to help me. I have had rather severe reactions to many drugs and after my experience the last few days I'm about ready to throw in the towel on the latest one. When i was searching for a doctor I was told my neurologist has had a lot of experience with POTS but in the end "a lot" seems to be a relative term. If anybody is able to suggest a doctor in Tucson I would be greatly appreciative! Thanks!
  5. I also seem to "melt" by 4:30pm everyday no matter if I was active or not that particular day : / You are not alone!
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