Hi everybody. I'm new here and I need some help and advice. I'm pretty sure I have some form of dysautonomia, but there isn't a doctor nearby that seems to no much about it. A little over a year ago my neurologist referred me to a cardiologist for a tilt table test. The cardiologist didn't seem to understand why I needed the test. I explained to her that my neurologist suspected that I may have dysautonomia, but she didn't seem to understand what that is. She decided to just check my blood pressure in the exam room. Starting in a lying position it was low. It then dropped when I sat up, and dropped again when I stood up. I don't remember that numbers, but she didn't seem to concerned about it and only told me to increase my salt intake. Since then I have stopped getting lighthead upon standing, but I still have a lot of other symptoms happening that I don't understand. Let me give some history and hopefully somebody can offer some advice. About two years ago, after several years of extreme stress and anxiety, I began to experience some really odd things. My mind began to get so foggy that I was becoming detached from everything. Everything looked distant and lights seemed like they were always too bright. I was getting extremely dizzy and would have bad feelings of pressure in my head and jaw. It often felt like there was a weight inside my head that was pushing my brain to one side or even downward. I began experiencing increased digestive issues along with ones that I already had. Eating would make all of these things even worse. Sometimes after eating I become very panicky and overly stimulated by too much noise. Everything can have a dreamy look to it. One doctor wanted me start checking my blood sugar, and what I noticed was that often during these dizzy/head pressure episodes my blood will become so watery that I can't get it on the test strip. Recently when I had one of these episodes my gums began bleeding badly. It seemed that perhaps my blood volume got so low that it was able to seep through my gums. I was spitting blood for about five minutes. Then the dizziness stopped and so did the bleeding. I brushed my teeth a few minutes later and there was no more blood. Another thing that happens, and this is usually after I eat, is that my legs feel weak and wobbly. Not shaky, but just weak. I'm extremely sensitive to medications and if I take any kind of supplement-vitamin, mineral, herb, probiotic-I become really spaced out and feel like my brain is being sucked downward. It is an undescribable misery that will last through the entire day and sometimes the next day. This happens even if it's only a tiny granule from a vitamin capsule or a single drop of an herbal tea. Back in 1988 I had surgery to remove part of my pancreas. It had grown too large and wrapped itself around my small intestine. They also removed a couple of inches of small intestine where it meets the stomache, and removed part of my stomache is it was totally ulcerated my the digestive acid not being able empty from my stomache. After the surgery I noticed that my heart seemed to beat a little harder and faster, and I was getting heart palpatations. I was also getting lightheaded frequently. I mention this as it may be some clue to somebody that knows more about AD than I do. I've seen all kinds of doctors and had all kinds of tests. My gastrologist came up with nothing, and MRI on my head came back clear. So did an abdominal CT scan, a complete ultrasound, and an echocardiogram. Blood test always come back normal. B12 is low but within normal range. I don't know where to turn. Sometimes I feel like I'm getting better and sometimes I don't. The weird reaction I have to supplements is alarming, but nobody seems to have any idea what it could mean. If anybody could offer some advice or suggestions I would really appreciate it. Thank you.
