sallyannsturgill

jamie my doctor told me there is no way it could be diet,unless you were a strict vegan that is not a possibility.my doc checking for pernicious anemia too.also rare disorders such as celiac .good luck .talk to you soon. have an appt.tomorrow with hemotologist. sally

thanks michelle ,i hope so,does anyone know if its possible for my daughter 15 to also have a b-12 deficienct? we have so many of the same things going on. sally

jamie my doctor said there has to be an underlying cause of low b-12 in someone my age 41.i am getting daily b-12 shots and lots of blood test.most test negative so far.what does your doc tell you the reason is?keep me posted.thanks sally

hi again.i just got off the phone with doc.now i am even more confused.not only iis my b-12 low but results show i have an increasind # of lymph nodes. anyone else with these problems?

thanks jackie me and my daughter also get the heavy eighed down feeling.it is really strange .it seems like my legs get heavier everyday,and they hurtso bad. i am going to check in to all suggestions everyone has .i have already started searches. thanks again

hi welcome to the world of dysautomia.i have only been to this site for about 2 weeks and have already found it extremely helpful.we are all here to get help not only for ourselves but for each other .hang in there.i too feeel terrible most days .im glad to here you have docs who are working with you .at first all my docs thought i was crazy .and i was beginning to believe them.feel better soon.sally annn

sorry you feel bad. you are not crazy.monday i was sent for a cat scan because like you my lymph nodes are swelled. i was just resently diognosed with ncs on 1-20-04.i had a large weight loss too .i feel horrible all the time.noone has mentioned lupus to me please let me know how everything turns out .thanks .feel better

hi lisa i know what you mean. this dissorder has alot of disbelievers .my dayghters school used to think she was making it up all the time .finally they beleive.but it took a pass out episode.thanks

does anyone break out in a rash on thier chest during an episode? my daughter had an episode at school and the nurse noticed a rash, almost like big red blotches. i have noticed them before when she doesnt feel good.

i love you so much sweeetie!!!!!!!!!!!! i am always herefor you. we will get through this together . keep up your sense of humor.who knows maybe we can do a "standup"(sitdown)comedy act together.that is if we can remember the skit. i love you ilove you i love you. love mom

hi i am so sorry you are feeling this way .i had my first episode in january and have been feeling the way you describe since that day. i describe it to my husband as "i feel stupid"its like my brain is not working at all. i know its scary.have hope .i do . i believe it will get better . it has to . good luck .i hope you feel better!!!!!!!!! sally

thanks to everyone for your replies. i have asked my doc about environmental things being the cause, he told me that is not a possibility.he said sometimes it can be viral .he really doesnt have much to say about the whole thing , he just keeps telling me to take more inderal, it does stop the passing out, but it does nothing for the nausua and dizziness and brain fog . he diognosed me with ncs but believes me and my daughter have "a ball of things going on" i am not sure he is very knowledgeable with this dissorder ,when i tell him about all the other symptoms i am having he looks confused and replies"i dont know why you are having all these other symptoms"anyone know a good doc in the newark deleware ,elkton maryland area? thanks again good luck to alll of you

i was diognosed with ncs about 6 months ago,i have felt worse and worse everyday since my first episode.i thoutght things couldn't get worse.but as you all know by now it can.last week i found out my 15 year old daughter has ncs,she passed out on tilt less than 10 seconds.does anyone have any idea why we are both being affected so hard and all of the sudden. thanks