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Sallysblooms

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Everything posted by Sallysblooms

  1. Yes, stress and illness use up seratonin. I have never heard of causing seratonin to go up with stress. It is called the Seratonin Sink. Just like many other things in our body are used when ill/stressed. Reserves are used up. Seratonin usually goes down with lack of sleep, I take 5HTP for replenishing it. I get it tested twice a year.
  2. It is in my mulit. that my doc. recommended I take.
  3. I have the vest, neck and wrist bands. They work great. The people there are so nice. http://img.photobucket.com/albums/v492/Sally11/Snails/polervest-1-1-1.jpg
  4. I take compounded Thyroid. I started off with a TINY bit. Now I am still on a small amount. I didn't like other kinds in the past so I didn't take them. It is a matter of the right kind and amount I think. I love it. Hair is thicker and I feel better. My cortisol and thyroid have been good. I take very small amounts.
  5. Have you been tested for Vit D, b12 and seratonin levels?
  6. Ask your doctor about Alpha Lipoic Acid. The right amount is very, very good for the nerves. Good for many things. Has helped me so much. It is used for a lot of reasons, but for any neuropahthy.
  7. I tried the full length compression hose once and I got violently ill, like I was JUST starting with POTS. It was horrible. Threw them away. Scared me.
  8. I started off with lightheadedness while walking once in a while for a couple of months, and then all in one day, everything failed. I couldn't do anything, horribly dizzy, lightheaded, tachychardia was horrible, nausea 24 hours a day, red hot at all times, blood pressure got very high and we couldn't get it down, air hunger, could not take any movement, just falling apart. Autonomic nervous system was not working at all. Since starting my hormones and supplements with my integrative doctors, I have slowly gotten better and better over two years. My CFS is doing great and now since having POTS, that is taking time but slowly, I am improving and having a life again.
  9. It is all dependent on the doctor and the knowledge of hormones and supplements. The blood and saliva testing etc. also. I get blood testing twice a year and saliva testing to keep levels good. I take bioidentical Tri Estrogen, Testosterone, Progeterone gels and Thyroid and cortisol all coumpounded. Also Pregnenalone and 7 keto DHEA. I had a total hysterectomy four years ago. My reg. GYN that was the surgeon was clueless, just gave me a Climera patch. I was so ill, in fact, I blame my POTS on the lack of hormones. I know hormones affect it in the young a lot. It all comes down the getting the levels correct and using all of the hormones that work together. Not many doctors really know how to do it sadly.
  10. Yes, finding a wonderful integrative MD that knows what they are doing. Brands of supplements, amounts and blood testing are imporatant.
  11. I am a regular on Phoenix Rising forums. That is an amazing forum for CFS but also lots of information for POTS etc. Dysautonomia is not discredited there. Quite a few of us have it. I have had CFS or ME as it will be called soon, for 20 years. My POTS began three years ago. People with CFS VERY often have OI or POTS. They often go together. CFS usually has a viral beginning that, just like POTS, ends up causing multiple deficiencies that have to be addressed. With supplements and my doctors, my CFS is doing very well and POTS is much better. I know both are chronic though so they will continue to be with me.
  12. I have had gen. anesthesia/surgery about four times since getting POTS. I do fine, you can tell the doctor and anesth. doctor about it. The IV is the best part!!!!
  13. I do SO much better in fall, winter and spring. The sun and I are not the best of friends, ha. I hate heat.
  14. Ask your doctor about Alpha Lipoic Acid for the neuropathy. Works for many, did the trick for me. It is used by doctors all the time. Autonomic Neuropathy is often the cause for POTS. The nerves that control vessels and nerves do not work correctly.
  15. We have to learn about supplements for sure before taking. I have two integrative MD's so I love learning all about it and trust what I take. I research constantly, books galore, ha. FDA is not helping us with the meds. they seem to LOVE, so I take them with a grain of salt. They love the pharm. industry and get money that way. We all are different so it is great to learn and then start low. Getting a great integrative MD is wonderful. Mine have so much experience. I trust them much more that my reg. MD. This is not rocket science, ha. It is just good to give our bodies what they need.
  16. Yes, Dr. Mercola talks a lot about this on his site. I hope we all do all we can. So serious.
  17. I called more of the offices today. They are getting lots of calls. You can call if you want to voice opposition. SO serious for healthy and ill people. http://articles.mercola.com/sites/articles/archive/2011/09/13/fda-to-ban-new-supplements-and-classify-them-like-food-preservatives.aspx
  18. Also, if you need it after testing, cortisol and thyroid help. I tested low for Cortisol between 1-4pm so I take a small amount at noon. Has been great.I take Thyroid also. Lots of things to address with supplements.
  19. Yes Neuroscience it good. I also have blood tests. My doctor had the test mailed to me. Saliva. I take Carniclear liquid. VERY GOOD!!! It works great to find deficiencies and use supplements to make us strong and help symtoms. Finding a good integrative doctor is key. We all need to contact our senators and congressmen as I talked about in my post. We will surely miss our supplements if FDA and pharmaceuticals take them to make money. The act is in the committee right now.
  20. Yes, the pharmaceuticals want to control everything. They do not want to compete with our supplements. We cannot let them do it. FDA is in their pocket to put it mildly. It is very important that we all google and find the phone numbers and email addresses for our senators and congressmen. It is really easy and fast. Easy to call the White House too. This is so important. We do not want to lose our freedom to use supplements and vitamins. If you are opposed, then you can just tell them that you oppose the FDA Supplement act and want to keep our supplements.
  21. The FDA is doing it again... They are trying to take suppplements. The big pharmaceuticals want to control it all. The Act is in committee now. Millions are calling and emailing their senators and congressmen. You can google to get their phone numbers and email. The people I have talked to are very nice, at White House, Senetors office etc. Most Americans take supplements and vitamins so we need to keep them available. They are the only reason I am doing so well. Most people take them to stay strong and prevent problems when they are healthy. I and many others relieve symtoms, and they keep my immune system healthy. ALA healed my feet. There are so many wonderful supplements to help with our deficiencies. There is a petition to sign if you are so inclined, or you can call and give your opinion. One link is at the Life Extention Foundation. Another is http://www.anh-usa.org/ http://www.capwiz.com/lef/issues/alert/?alertid=51641606&type=CO
  22. There are some excellent supplements that can help. I agree, CoQ10 and D-Ribose. I also take Liposomal Glutathione. I have been tested for Thyroid and neurotransmitters. I needed Thyroid and Cortisol. My cortisol is low from 1-4 pm.
  23. I am very sorry about the loss of your Dad. That horrible stress can surely make you very ill. I pray you and your family will heal a little every day and you will get better soon. The spinning is the WORST.
  24. I take one antibiotic just fine, you have to find the medicine that works for you. Infections are dangerous sometimes. Bladder infections, ear infections, etc.
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