Mayo Story Of Someone "overcoming" Pots in Dysautonomia Discussion Posted March 21, 2012 · Report reply We just returned from Mayo last week. We were offered the program and it was made to sound really good. My daugther could not participate as I took on a new job back in January and don't have the time off. My daughter was born with this condition. We did not know what was going on as a newborn baby. She danced from the age of 3 until she was 11. Every year she declined in health and eventually had to walk away from dance due to the intense pain and blood pooling and growing symptoms/diagnoses. Not knowing what was going on at the time, we pushed her to "suck it up" and "move on." It wasn't until she was twelve that we found out her diagnosis and began putting all the pieces together. She became deconditioned while dancing not for a lack of exercise or being lazy.We tried explaining this to them and kept asking why this program would help if exercise did not help the first time round. Why did she become deconditioned when she worked out for over an hour a day more than three days a week. They could not come up with a good answer. They had us watch a video of girls that went through the program and were now "better." The word "cured" was never used, just the word "better." In the video, the girls were jumping around and doing exercises, but they would always collapse on a couch in the midst of doing a short stint of their activity. They sent in a nurse as a cheerleader to promote the program. She could not answer my questions and instead of responding, would always redirect back to the "script" of what to say.We got home and my daughter asked me, "mom, is this really going to make me better." All I could tell her is that we would try.I am glad for this feed. It has helped me make up my mind as to whether or not we will return for the program.