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McBlonde

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Everything posted by McBlonde

  1. EXACTLY! Oh for the "good ole days" when I just had orthostatic hypotension & would faint and then get up and go my merry way!
  2. THAT is an AWESOME description of how I feel when I take a beta blocker!! Wow..."being sucked through the floor (or wishing I would, lol)
  3. Okay, for Dysautonomia For Dummies does that mean that I had a predisposition for it and at 3 years old something triggered the over reaction of my autonomic system? (Side note: I swear my IQ has dropped 40 points in the last 3 years)
  4. and what is SO frustrating is waiting for months on end to see the best specialists and still not getting the answers!
  5. Hahaha Sue! Thanks for making me laugh today!! The GOOD news is that it's a very nice house. The BAD news is that it is nothing, nowhere near my taste & we bought it in 2003 and with housing being what it is now, well, here I am with no exit strategy possible, lol! LOL, so many worst things but I do laugh whenever I hear the word Prozac because that's what I think about ....this house! Brethor9 Yes, you are right. I didn't have the POTS portion of dysautonomia. At the time I had the low BP, orthostatic hypotension and fainting part going on.... Back in 2010, when the cardiologist said POTS, my heart rate was over 165 and he insisted I take 5 mg of Bystolic. It did lower my HR, but after 2 weeks I had bad fatigue and something not depression, but like it.... I don't know how to describe that feeling but it was bad. They lowered the dose to 2.5 but that didn't help. My guess is because I have periods of my BP dropping 40 or 50 points when standing, BB probably aren't the right thing for me. Maybe I need the HR increase to compensate when on occasion my BP drops so drastically. I don't know. The more I know, the more confused I am getting. Right now I take 1.25 Levoxyl .1 Florinef in AM and 1mg of Klonopin with 25 mg of Trazadone at night.
  6. Wow! THAT is great! Thank you! I was able to raise my BP from very, very low to normal by not drinking the 2 litters of water but instead drinking 2 glasses plus 8 bottles of G2 a day, but I am so tired of it so this is something else I can try. Thank you so much for sharing!!
  7. No!! Thanks, lol! If I knew it, I don't have enough blood in my brain right now to retrieve it! Thank you for answering!
  8. This is off the topic of the thread, but if I don't type it now, I won't remember. Cerebral hypoperfusion ***** so bad!! I see many of y'all mentioning benadryl..... Why (or what is it) that benadryl helps? Thanks!
  9. I am the only one, but I wonder if mine could still be genetics. The first time I fainted, I was THREE years old and I fainted twice that day.
  10. Yep. I went through them all, too, starting in the 1990s. None of them worked right on me except the Effexor XR back then... I gained 30 lbs in 30 days on Cymbalta and I bought a house I don't like on Prozac. The Effexor XR on the otherhand, was great! I lost weight and kept it off...... so, I don't know why now I'm suddenly sensitive to such a small dose. I take Klonopin at night, but it does nothing for the adrenaline surges for me... If I wasn't having those and now the feelings of despair coming back, I wouldn't even think about taking an anti-depressant again.... but this crying at the drop of a hat or the insane over response to the slightest stressor is starting to take me to despair again, so I feel like I have to do something. That week when the Effexor was working (before it built up too much) was great. I remember it fondly.
  11. I wonder if you take the regular Effexor and not the Effexor XR if you get those crashes like you can get with regular, not time released, Adderal? Come to think of it, when I took the 15 mg of Adderal, it ALSO made me feel dull, apathetic and unable to find the energy to get up and do anything. Does Adderal & Effexor XR have any of the same properties? PS... I must be the only person in the world that responds to Adderall like that, since it's so popular with the college crowd, lol!
  12. I love it when Chaos comes, she and I have 4 hour lunches. Ha! Our husbands came along for the first one and now they just drop us off together. We had fun this week. It's great to get with others who understand you. Issie Maybe I need to move to Arizona!! Good doctors and good friends are hard to find!
  13. Talked to the pharmacists ..... They say the response sounds like the dose of Effexor 37.5 is too large (for me). Their suggestion was that I tried either (1) Taking the Effexor XR 37.5 at night Or switching to regular Effexor so that it can be filled at baby doses. Any opinions on that?
  14. Sue, I agree.... at least in my case,
  15. Abby, prior to going off Effexor in February, I had taken it for a long time. Unlike all the other anti-depressants that I tried, I lost weight on Effexor. In most people, I think Effexor XR is one of those that actually gives you energy. It appears to me that the side effects I described above seem like the dose is too high now. (More sensative to drugs now) I wonder what would happen if I took the Effexor at night? I wish they had a child's dosage. I wish we still had a pharmacist on this board! It seems like such a simple question for people that know what a drug has in it and how it works. I am beyond frustrated at not knowing what to do.
  16. My brain is dead right now, but I did want to tell you I understand what you are saying and tell you that I care!!! I will post more to you tomorrow when I more clear headed! Until then....xoxoxoxo
  17. Well, 5 days and still no call back from my doctor. I wish there were websites that you could go on that could answer questions like this.
  18. That reminds me of getting the adrenaline surges at night while your're asleep as part of POTS. Postural orthostatic tachycardia syndrome would indicate your standing up, yet these surges that are considered a symptom of POTS occur when you are lying down. Sometimes I think... Is POTS the disease or the symptom of the disease?
  19. That is SUCH an excellent post Bren.... Too many health care providers will check vitals, see that they are now normal and COMPLETELY miss that aftermath the surge of adrenaline causes! Another thing I have learned through the years, you can try to be perfect..... try to eliminate every known possible stressor that could cause an adrenaline surge, but then still get one again no matter what you do. That lack of control over it is one of the most frustrating things to me.
  20. Yep.. Jangle is right... It's the surge of adrenaline Causes such a cascading effect on our bodies after it is released. I had a relapse after having my teeth clean, for goodness sake!! Hope you feel better!
  21. I DO have a call into him, but I was hoping some knowledgeable person on the board would have some ideas AND I have previously tried every single one of the SSRIs through the years and not been able to tolerate. Besides, posting it here might ring a bell with someone else that has had severe fatigue and never one thought it could be related to an SNRI!
  22. Congratulations!! I am so happy for you! Take care!!
  23. Thanks for answering. I had taken 75 mg of Effexor for years and got off of it last Feb (got off meds for testing). That's when I noticed that my worst symptom of severe fatigue went away, but after about 4 months the sudden surges of adrenaline and dread just about overtook me! I wasn't positive it was being off the Effexor that made the fatigue & I was at a point where I HAD to do something, so I started the 37.5 xr. It is like I was on too high a dose isn't it? I stopped it again. Now I'm not as fatigued (and I'm typing on the forum again, BUT the adrenaline surges and despair are creeping back. There is not a dose smaller than 37.5 is there? I don't get what about that small amount would cause fatigue??
  24. Started Effexor XR 37.5 on the 11th. By the second day, waking up at night feeling dread, with that awful feeling that something was wrong was completely gone. No more adrenaline surges or waking up with dread. I remember saying on the way back home from Florida.... I feel happy. Eliminated all my IBS issues and fibro pain. But, within a few days, I noticed my resting heart rate had dropped from the high 70s - 80s down to the 50s, but my standing heart rate continued to be over 125. By 1 week, I noticed that the fatigue had set in... Extreme fatigue. I felt dull... apathetic and unable to get up and do anything. Started having carbo cravings What part of Effexor XR eliminates the adrenaline surges, sense of dread, IBS and Fibro pain. What part of Effexor causes the fatigue?
  25. Ahhh!! Happy Anniversary!! Have a wonderful time!
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