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McBlonde

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Posts posted by McBlonde

  1. That was a tiny dose (2.5) of Bystolic that did that number on me after 2 weeks (like you said "I was crying randomly and spontaneously, and really exhausted" ) after 4 weeks. I stopped the Bystolic & those symptoms disappeared.

    I still haven't taken any of my Clonidine yet. It's sitting waiting along with the Wellbutrin. I realize that what I'm afraid of is not what happens if I take either... What I am afraid of is what happens if I have bad side effects and stop taking it. A regular person takes a drug, has a side effect, stops taking it and everything goes back to how it was before they started the drug. I don't seem to be like that... New symptoms after I stop is what scares me.... :(

  2. That's the part I don't understand about my own reaction with the beta blockers that I've tried. I don't have the fatigue/blues right away... It's like a month into taking a beta blocker that it hits me (feels sorta like a build up to that point i.e. like how it takes an anti-depressant a month to work) although in my case after a month of beta blockers have built up in me, crushing fatigue hits and a bad depression like feeling settles over me. With those symptoms, could the beta blockers be suppressing too much of my NE leading to fatigue and the blues?

  3. I'm on low dose propranolol (10mg TID) and love it. It controls my hyper surges pretty well and the tachycardia. Like Libby, bbs actually lessened my fatigue because my heart isn't working so hard just standing up. I noticed fatigue for the couple of weeks and then stabilized and I don't notice it at all anymore. I also had a lot of crazy heart issues and it has really leveled these out. I don't feel like there's a bird living in my chest anymore. The only issue it has exacerbated is my bradycardia, but it's not a lot worse than it's always been. It's also caused some wheezing at night with allergy issues.

    McBlonde I was told that they cause fatigue because they block ne from its receptors. NE causes your vessels to constrict, your heart to beat faster, and your bp to rise in response to demands on your body (ie when you stand up). Since these things aren't happening you're getting less oxygen to your brain and lungs and more pooling (your vessels aren't working as effectively to move blood up), so you are more tired and experience SOB. This is why you generally salt and fluid load while on them, to counteract the "looser" vessels. Don't quote me on that; I just asked my doc and this was what he said. :)

    So maybe that's why it took 3-4 weeks of the Bystolic building up in my body before the fatigue/blues symptom hit? I've wondered about that, too.

  4. It would be a good idea to have your aldosterone/renin levels checked prior to starting Florinef, because once on it, you get false low levels of aldosterone/renin. However, so many labs/offices don't do the test right. It's really amazing. Your supposed to lie in a quiet room and have your first draw and then have a second draw when standing. The sample has to be put on ice immediately and processed by specific criteria.

    I took Florinef .1mg since 2003. When I started having High Blood Pressure and edema in my left leg a few weeks ago. I just stopped it. I can't tell a difference taking it or not taking it. The only thing is that I have stopped peeing so much since I stopped, but that doesn't make any sense to me (regarding the Florinef)

  5. Thank you! I'm sitting here with a prescription for Clonidine and one for Wellbutrin. I have hyperadrenergic pots. Saw my primary care doc Tues. and he freaked out over Clonidine and Wellbutrin, lol... So, I'm still sitting here debating with myself on which one to try first. There is all very hard when you've had bad experiences with meds to start with. Any thoughts on which one you would take first?

  6. thats weird Mcblonde!..... I have major high catecholamines and yet my specialist put me on florinef and beta but did not like the idea of Clonidine....he suspects my nerves are effecting the constriction/dilation issues and somehow Clonidine adds to that....I forget the whole explanation ......goes to show how treatment can vary so much

    Bren

    I know! Here's the link to the treatment plan: http://circ.ahajournals.org/content/117/21/2814/T2.expansion.html

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