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houswoea

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Everything posted by houswoea

  1. You are not nothing. You are stronger than most. If you're still dreaming, still functioning, still living- ON YOUR OWN I might add- through this horrible nightmare, you have been through and accomplished more than many people. You are not nothing. You are a victor in this battle even if it doesn't feel like it. Oh yes, and countless times I have left in a fog and come back to find that I look like a crazy person! Hair allllllll over the place, clothes on backwards, different shoes. Once I even almost left for class without a shirt on!! Yeah... that would have been interesting!
  2. Thanks! I do have an electrophysiologist, but he told me that he couldn't help me anymore than he has and that I should go to a pain clinic and figure out a way to manage the rest, or go back to my primary doctor. She think I'm crazy and sent my to a psychologist, so I don't really like that option. I'm not quite ready to give up yet! It sounds like the Mayo clinic in Rochester is where it's at... hopefully I can get an appointment, they are pretty dang busy!
  3. My St. Paul Heart Clinic guy is nice, and he has tried to help me every time I have cried in front of him. He just doesn't know what he's doing with POTS, which is okay. But I need someone who does. I looked on the physician list and saw there were a few options. So I was wondering if anyone has seen any of them? Should I trek out to Mayo Clinic? Or will the U of M hospital suffice? Thanks for any input! I appreciate the help SO MUCH! Elizabeth
  4. I take prilosec and it was fine for me! It made me feel alot better! I started taking it because I developed an ulcer from taking so much ibprofen all the time, so things might be different for you. But side effect wise, I didn't get any negative results.
  5. Does any one else feel like every doctor ships them off to a different doctor? When I go to my primary doctor they say see the cardiologist, and then my cardiologist says to go to my primary care doctor. Meanwhile, I feel like I'm losing months of my life because I can't do anything. This is very frustrating to me. I know they are trying hard to help me, but I'm so tired of stupid POTS. I'm only 20, and I just want to live like a normal person.
  6. I would love to know this answer too! Many of my friends really push me to do things to "regain stregnth" or whatever all the time! But I don't think it works like that... doesn't it take a bit to get back up and going?
  7. It's okay. How many times have we been denied from medical professionals, and later found we were correct? A lot! You know your own heart, and there is no way he can see what you've been through. However, I would like to say that counseling has been the biggest blessing in the whole world! You can usually find some for free at churches or some clinics. It's a place to find someone who always believes you and listens to you talk about how much it hurts (physically, I mean) and they don't call you a liar Don't let them tell you who you are. Just breathe deep, and go to the next person. I think it's safe to say that we've all been through a million doctors in our lives. I know you can do it!
  8. It's been about seven months since I developed POTS due to a virus, and I was diagnosed in December. They gave me some fludrocortizone to take and I have been trying to drink water and eat sodium.... The problem is my chest pains are getting so much worse! Everyday, I come back from class and lay in bed and cry because it hurts so much!! My cardiologist said to take more florinef, and I did, but it's been weeks now and its only getting worse. So, any suggestions on things to help with this? It would be much appreciated!
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