LauraAsh21

I believe that you do have this condition. I also have joint hypermobility and dysautonomia and POTS are a secondary condition because of the first. I also went through various doctors in order to get diagnosed. I started having symptoms at the age of 12, I am 23 and just now got diagnosed. The thing that convinces me is the joint hypermobility and the IST. I was also misdiagnosed with IST and there is a definite way to find out whether or not you have POTS/Dysautonomia, rather than just IST.... Ask your doctor for a tilt table test.... tell them you want this test to determine if you have POTS or IST and it is the only way to know the difference. Research it... if you have a positive tilt test, you pretty much have dysautonomia. Print something out to show your doctor, and tell him you will not give up until its done. If I have learned anything with this condition... you cannot settle. Most doctors have no idea what it is, so print stuff out and take it to your doctor. Tell your doctor that you have to know what is wrong and you are asking for their help. I wish I would have been more aggressive with my doctors, maybe it wouldn't have taken me 11 1/2 years to get a diagnosis. Good luck. Let me know!!! I'll keep you in my thoughts! Laura