Chris
-
Posts
5 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Resources
Physicians
Member Stories
Information Resources
Links
Everything posted by Chris
-
Hi Brye, I, too, was tired all the time. I felt like a rag doll, and it took a lot of effort on some days to move my fingers!! My situation improved TONS when I began to walk. This was before my diagnosis, and I just went out and walked. It seemed like on the days I didn't move my fatigue was worse. Now I am productive and I can keep up with my kids. I really hope you can find something that works for you. Good luck. Chris
-
Thanks for the reply, and the referral of the Vanderbilt Chronicles. I just read them and it was helpful. I am new to POTS and this forum, so I'm sure I'll learn how to navigate around soon enough. Chris
-
THANK YOU for the detailed report!! I am set to go into Vanderbilt in 9 days, and your account will help me to know what to expect. I have already had the autonomic function test, blood volume test and sweat test as I am VERY fortunate to live here in the Nashville area. While I do not have it as bad as you, I will be ineterested to know what will help. Let us know how you're doing, and next time you're at Vandy, let me know -- I'll come and visit! Chris
-
Is Pots/dysatuonomia Considered A Rare Disease?
Chris replied to erikainorlando's topic in Dysautonomia Discussion
I was just diagnosed in October 2009 and guess what? My next door neighbor also has POTS! Imagine the odds! I think there are a lot of undiagnosed people out there, and it's not rare when it happens to you! -
Has anyone participated in a clinical trial at Vanderbilt? I am set to go there for the last two weeks of February. They are doing all sorts of drug trials for tachycardia, and they are looking into the role the kidneys play in POTS and orthostatic intolerance. While I am NOT looking forward to two weeks in the hospital, I am interested to see what new medications they have for us and how they work.