KristinL

I just went to see my doctor (Dr. Grubb) yesterday and I specifically asked him about brain fog. He suggested fish oil. NOT the capsules but the real fish oil...I guess it is liquid and has to be refridgerated because it goes bad in a couple of weeks per the doctor. I am going to go pick some up today. I would check with your doctor first though since you are pregnant...I don't think it would have any adverse side effects to the baby but check first! I hope that helps Good luck and enjoy your last month of pregnancy

Dr. Grubb is so worth the wait. I actually just saw him yesterday and waited three hours to see him but he spent an hour with my husband and I and answered all our questions and concerns. My prayers are with you

I too googled "POTS" and this site came up. I did not join the forum initially when I was diagnosed in 2006 but only after a terrible relapse in August 2009. I joined in the forum and only wish I would have done it in the very beginning! I am so grateful that I came back and that you all are here! Kris

I agree this site is a lifesaver for me! I was so down and out before coming here... but with the help of you all I am more optimistic for the future and much more informed about my POTS! Thank you. Thank you. Thank you. ((HUGS)) Kristin

I am not sure that I can add to this conversation except to say that I have tried many stimulants and Concerta works the best for me. I have tried Adderall and Provigil but I did not see any improvement in my fatigue and then I tried Ritalin but that gave me a constant headache. So I stick with Concerta and that seems to work best for my fatigue. If I don't take it first thing in the morning I will sleep all day. Best of luck finding what works best for your son Kristin

I can relate. I can start out feeling good and having a plan for the day. Then I get showered and ready to go and my plans are out the window. I am too exhausted to anything on my "to do" list at that point. Sometimes if I rest for awhile I can get up and go for a small errand but some days are just a no go. Kris

Hi Prettyinpink... I have not sent a PM before but I THINK I sent firewatcher a message that included my email address. I hope she got it Thank you! KristinL

I'm interesting in finding work out buddies! I have gained about 100 pounds since being diagnosed with POTS in 2006...which does not seem to be the case with many of you all on this forum? I use to run a lot and exercise a lot before being diagnosed with POTS. I now can do minimal before getting tired and then the chest pains for days following a 10 minute recumbant bike ride or a light swim in a heated pool. I would love to be a part of a group of individuals who understand some limitations in regards to exercise Happy New Year! Kris

I notice major hair loss when my POTS is bad. I lose so much in the shower that it clogs the drain As for greying...I find a few grey hairs but I pluck them out I have only noticed the greys for the last couple of years. I was diagnosed with POTS in 2006 so I'm not sure for me if greying goes along with my POTS but I am sure that the hair loss does. I just turned 40 this year

Hi CHRISTYD -- I don't get nausea at awful as your son does by any means but when I do I suck on spearmint candy. Sometimes it takes a half dozen or so but the nausea does subside. I know that probably is not much help but I thought I would share what I found works for me I hope your son finds relief soon! Kristin

Love it daisy!!

Elena11 it's so great to hear that you are feeling so much better. I always find encouragement and hope from reading posts from people that have found things that they have done to help themselves feel better. I hope you continue to feel well

Thanks for your reply sue1234! I hope others will add too about their hormone experiences. I believe there is a connection. I am just not sure what? Maybe someone will have great insight to share

I have been taking Depo Provera injections for birth control for about 15 years now. I have had no side effects from the injections during this time. I should back up a bit. I was diagnosed with POTS at the end of 2006 (post-viral). I went back to work at the end of 2008 (part-time). I was doing well. I had a complete relapse at the end of August, 2009 and have been down for the count ever since...ugh! My question is: does anyone see a decrease in symptoms right after getting their Depo injection? I can't say I ever really noticed a marked difference but the last couple of times I have got the injection my symptoms have decreased markedly. Oh... I am 40 years old and I am wondering how much hormones play a part in POTS. Thanks for any thoughts or wise advice you can pass along Kristin

Hi Sarah I have tried Ritalin, Provigil, Adderall, and Concerta. For ME the Concerta works the best and I have been taking it for three years now. I too see Bev and Dr. Grubb I hope you find a medication that work for you too. Best wishes, Kristin

I agree with everyone ever since I was dx with POTS 3 years ago I am hypersensitive to smells, noise, light, etc. I have our tv on closed captioning most of the time because our TV is too loud sometimes ---even on the lowest sound setting.

Hello Erika I too have felt like I did not want to go on if I had to live with POTS another day. But I have a teenage son who I would not hurt in any way. I was diagnosed after a virus at the end of 2006. I progressively got better and even graduated this year in May with my master's degree and started back to work. I honestly could not have been happier. Thinking I had overcome such odds and now I was doing the work that I love so much. Then at the end of August I had a complete relapse... I did not know I could have a relapse with my POTS...I thought I would progressively get better and stay better. Oh now I know differently! I started to look for support online and that is when I found this forum. This is the first time I have posted any comments or shared any of my story but believe me I read all the posts. I am so grateful to all of you for being here and sharing your stories. I believe this forum has helped me to find hope again. So thank you all! Kristin