sj75

I wondered if anyone knows if there are any books about pots? ive seen lots of medical journal articles and the odd paragraph in text books but was wondering if there was anything for sufferers and their families? sj.x

Julie, Its interesting to see on your signature that you are on antihistamines and singulair, im trying to work out how it all fits in but i have asthma, food allergies and allergic rhinitis and am wondering how much of an impact taking control of my allergies will have on my pots? Im so new to this and have got soo much to learn, i cant help but think this is a condition that you have to resrarch and act upon yourself as the health professionals seem to know so little about it, im seriously thinking of printing off the articles and sending them to my dr!

Thanks guys, ive got so much to learn I think i may have this!!! I am going to do some more research and then approach my cardiologist. Im due to have the flu jab tommorow, is it safe to do so with this condition (i worry as i react to loads of medications)??

wow, thanks for that. Do you know if and how it relates to POTS?

Im in the uk and i know that here the generics drug components are required by law to be exactly the same as the branded, however, i used to be on atenalol and one of the generics of it used a different ingredient in its outer coating that i was allergic to. aused me real problems and ages to figure out but the Dr spoke to the pharmacist and they could order in the one that suited me.

I just wondered what MCAD is? ive seen it mentioned on a few posts and am trying to get to grips with all the different terminology on here at the moment. Thanks

I have been reading posts where people have a ?connective tissue disorder called EDS, i was wondering what symptoms this would show and what tests can be done to diagnose it?? Are there any treatments??

Thankyou so much guys, thats really helpful. I will ask my cardiologist about the mixed alpha beta blocker. The medication table is extremely useful and i will print it and take it with me to my next appointment. The cardiologist sent me a letter with a list of medication on that they will look at trying but when ive looked them up some of them arent suitable for the type of pots i have. sj.

I have this form of pots and have had some lovely advice from here about alpha blockers. I was just trying to find out what other medications may be useful for this form of pots. I have read on here about all kinds of tablets from valium, antihistamines, anti depressents to salt. I am quite new to pots and dont fully understand how it all works but would be interested in looking more into treatments and tests (ive had a ttt what else should i ask for) and medications. Also, i have been offered the flu jab, pneumonia jab and swine flu jab and am just wondering how other people feel about getting these? sj.x

Hi Goldie, Thanks for the reply, nice to find someone else on here from the uk with this condition. Ive taken down that professors name to give to my cardiologist. What sort of tests do they do? (am just wondering if i can get any of them done through my cardiologist to get the ball rolling so to speak.) sj.x

Thanks guys, I am currently under a cardiologist who has always given me excellent care where my heart is concerned. Im not sure yet how much he knows about POTS although it was him who made the diagnosis. I have a copy of the TTT which shows my pulse doubling and my bp fluctuating quite a bit but climbing overall. Having the diagnosis has definately made the things that have happened to me slot into place. The bisoprolol is a beta blocker and ive definately noticed an improvement but its such a balencing act as it makes me wheezy and more tired (if thats possible). I think it is the adrenergic form that i have, i never actually pass out (so far) but get to the verge of it especially if standing still. What sort of help and treatment is available for pots sufferers as ive struggled here in the UK as no one has heard of it which makes it difficult for people to understand why i cant function. Are there any treatments or therapies that are suggested? do any of you use any walking aids that help?

Hi All, I just wanted to say what a great site this is, so much information and so supportive. I live in the UK and have had the symptoms of POTs since 2006. It started in the Feb after i had had surgery for a heart problem and for 3 years after that i was deemed a medically anomoly and they put all my bizarre symptoms down to my heart problems despite there never being any evidence of this. Finally in July this year, the penny dropped and my consultant suggested i may have POTS and looked back at my old TTT and other tests. In my case my pulse and bp go up and although i have some residual symptoms all the time i seem to have flare ups that can last for months. Anyway, i obviously dont want to have POTs but being able to explain and put a name to my symptoms has been a huge leap forward as i was getting severly depressed by the uncertainty and fear about what was going on and was getting fed up of being told i was suffering with anxiety etc. Im fairly new to it all and was wondering if anyone could help advise what sort of dr i should see, what sort of medications i should be looking at (am not a fan of taking anytihng i dont have to as im really sensitive to meds) and what sort of treatment plan i should be on as it seems to be something that there is little information on over here. At the moment i am on bisoprolol and asprin. sj.x