eva.gonzalez

I have never been screened for Celiac, GERD,or gastritis, etc. And I don't think I'm allergic to nickel, but perhaps I am and don't even know it. I only have an electrophysiologist and now i feel like I'll need to see a gastroenterologist and endocrinologist to help me alleviate the symptoms I am experiencing. Thank you everyone!! I really, really, appreciate it!

I feel like this all the time. I can easily sleep 13-14 hrs. and during the day i nap for a good 3- 5 hrs. I don't even know how I get anything done.

Ok, so every once in a while right after i eat, I would get really nauseous or other times I would actually throw up. But..now, every time I feel "full" I throw up. So I've been trying to only eat a certain amount so that i don't feel "full" but when I do, I feel extremely fatigued. The only way I can describe it is..it is similar to the same feeling i get when I've only had enough alcohol to make me extremely sleepy. So it's either feel really, really, sleepy, or eat until I'm full...but throw up usually immediately afterwards :/ This has been going on now for a month and a half! Does anyone else experience this? And if so, what do you do to make it stop, or help it not to happen so often. I haven't been able to go through a single meal without this problem, and I'm beyond annoyed about it.

I'm so blessed to be on this forum, thank you everyone for your input, i really appreciate it. it made my day Jana-My doc gave me Florinef when i was first diagnosed, and that didn't help at all. He then gave me 5mg of Midodrine and it helped for a month or so, and just recently i saw him again and he gave me 10mg of Midodrine and i've been taking it for about 2 weeks now, i haven't really noticed a significant change yet..hopefully sooner rather than later Brye-I got blood work done this past spring and apparently i had the antibodies for epstein barr virus...i didn't really notice i had it, the POTS gives me enough fatigue!! I am definitely going to go see my family doc. about getting a CFS diagnosis, I would see my cardio about it but he is only in my area every other tuesday so he gets booked super fast, i wouldn't be able to see him until 3 months from now. Thank you everyone for your kind thoughts

I have been experiencing intense fatigue for a long time now, I have had POTS for a little over a year now, and I've always known that POTS causes excessive fatigue. My fatigue is bad as i'm sure it is for most people, and I sleep between 14-20 hrs a day, sometimes a few hrs more on the weekends and my question is---is this a common symptom for POTS, I mean this much sleep?? And when i get up i still feel like i haven't rested as much as i should have, and the fatigue is an all day, everyday thing. I am so tired allllll the time. I know everyones POTS is different than mine. I am wondering if maybe I might also have CFS along with the POTS, so I am thinking of making an appt. with my family doctor about it. I asked my cardiologist what i can do about the fatigue and he just told me to stay off the caffeine (chocolate, coke, etc.) which i do, and i still feel the exact same way, so that didn't really help. The fatigue is affecting me so much (along with all the other POTS symptoms), i miss a lot of school and work. I am seriously considering not going back to school this spring. Does anyone else on the forum have CFS and POTS?? and if so how bad is your fatigue and what kind of doctor diagnosed you? should i even see my family doc. about it...or.....is this how bad the fatigue is always going to be because of the POTS?

I feel fatigue all day every day, and when I flare up it's even worse as for the memory loss, i suffer slightly from it, I'll be talking to someone and forget what i'm talking about or i'll forget names of place or things, its embarrassing sometimes cuz they always look at me funny -eva

Congratulations Catherine! I'm so glad to hear that you are well, I am a newbie to this forum and I'm so glad to meet people like myself, and this definitely gives me hope that maybe someday i too will be able to be rid of this horrible disease -eva