lmt033167

Sorry to hear you're going through this, it is a difficult thing to live with on a daily basis. I had surgery in 2005 and found out I have severe chronic endometriosis and adenomyosis - so a double whammy where the tissue grows not only outside but inside too - which is SO painful I can't explain. My gyno basically took out the lining of my uterus except a thin layer hoping it wouldn't grow back - that worked for about 4 months. I couldn't have a hysterectomy because my insurance at the time (BCBS) wouldn't let me have one unless it was cancer, which thankfully it wasn't because I wasn't going back in for another surgery after them telling me I was approved for one and telling the dr no. He told me I had contractions like in the last stage of childbirth, I was given 2 - 750 mg Vicodin [sp] 3 times a day daily...um yeah I didn't take it - no way I could ever function even on 1 of them. On top of looking like I'm 6 mths pregnant all the time due to Adenomyosis, I had hundreds of polyps removed, which didn't help with the pain and symptoms. Mine wasn't cancerous and I really hope yours isn't either, although they did caution me that it could later on if the lining grew back turn into it. Last year I had a genetic test for breast and endometrial cancer, luckily my insurance now covered it since it was part of my yearly exam and it came back 0.0% chance. Hope you feel better and get through the procedure quickly and pain free - take the meds if you can, it will help with the symptoms...I kick myself daily now dealing with female pain and no meds on top of everything else.

wow I didn't know they added that to medhelp's website - thanks I'm going to add it now and actually use it strike that! I already have it and forgot about it, oh my I'm really embarassed lol

, that's what I told my husband after I read this...so he's going to buy me some Long Island Iced tea mix - put some in with tea and it's great, plus it's easier to make it as weak or strong as you like. He was all for the idea, he likes when I'm a little tipsy lol My mother was an alcoholic also, since she was 12 or 13, runs rampant in her family, but I've never had more than 2 drinks - my kids call me a prude If it helps with my symptoms or at least I can feel a difference, I'll try it before trying another med that may send me to the hospital again.

I know what you mean, I started looking for psych drs to get an eval and went into a stinkin panic attack just thinking about driving on the interstate to get where this guy was OMG I don't drive, my brain doesn't work half the time, the other half it just naps and I wonder where it went lol Funny how things that make us anxious or stressed can cause these symtpoms isnt it? I haven't driven but once since last June, but just the thought of it made me panic - all I can think about is fainting again driving and I know in my mind I don't drive anymore, but it's still there how weird is that

With my documented case of lifelong Syncope & near syncope, I think that's may be what I get approved for. Kick in my heart stopping when I pass out - documented on my TTT woot at least I did something right lol maybe I'll be surprised and get approved quickly also. I have NCS, OI, [and a long list of other things] I have 20 or 30 documented dr visits since July 2009 trying to treat me, even with meds & pacemaker/icd I still pass out. I passed out at the dr's office last October so hopefully that also will help my case I do have the dr's notes & orders that say I have to lay down supine when dizziness or symptoms starts, sometimes as often as 6 times a day, can't say I've ever been happier about my craziness as now, so hopefully that will mean they treat my case like yours Brye houswoea I agree totally - I have had BCBS insurance and paid $$$$ premiums for substandard care, not saying all doctors are the same - but 3 pcp's in a row 5 years running told me things like nothing was wrong, lose weight and you'll be fine. The jackpot was my pcp of 2 years, telling me to lose weight and he had just opened a "spa". He prescribed me phentermine with major heart things wrong and didn't tell me - he signed off on his EKG that showed I should have never been on meds like that. Hmmm pcp care with very little pay or charge my patient $7,000 for 6 months weight loss program What I find most interesting is the fact they think I've had this my whole life and dr's told me it was nothing to worry about, when I read others say their drs tell them similar things it makes me wonder why they do this? is it a stereotypical thing and one treatment fits all mentality or is it monetarily driven where they don't want to or won't share their fees with other doctors... just my crazy musings [steps off my soapbox] I had to have a psych eval because my dr said I was depressed over being young and having major health problems that were progressively worsening and the risk of sudden death - but I don't think everyone has an eval, only if you put depression or mental issues as being a condition you suffer from.

after calling my first choice for psych dr, he was booked up until the middle of June...back to starting point and I researched 20 drs or so and called 12 before I found a doctor who seemed like I would feel comfortable going to and had good recommendations...got an appt for April 21st, so hopefully I can get her eval and dx treatment plan into ssdi before they make a decision now if this one tells me the same thing, I'm hiding in my closet for awhile lol

wow Brye that is unheard of, you have to play the lotto seems really lucky to get approved on the first go round. How in the world did you get approved on the first try? do you have conditions that are listed in their book that makes it easier for you? please share with us or point me to a post if you posted it before. I'm crossing my fingers hoping, but the psych saying no to depression and my pcp saying yes doesn't seem like a good thing, hopefully with my physical things they'll approve me

wow 2 & 3 years wait? how do they expect families to wait like that with no income? we own a small business (actually as my husband reminds me often HE owns 100% lol) I was just his slave for 10 years so I wonder if that's going to make a difference? if they deny me, I'm going to go ahead with the attny first time - it all sounds so stressful and I don't need more stress - will attny's take your case on first denial since they won't make as much if you had to wait longer? oh I remembered something else - why in the world do they ask about yoru driving record and if you've been in any accidents? I was SO embarassed I told him so confidentally - No, I've never even had a car ticket! I was so proud of myself until he looked puzzled and said, what's a car ticket? ummm yeah that's one of my things - replacing words with other words - car ticket was speeding ticket lol that gave me the perfect reason to tell him about dysautonmia but he didn't wnat to hear it, just said ok wrote something down and changed the subject

that is wonderful, I would love for one person I know to really understand, even if they don't have it, this baffling disease or at least feel for 1 day what my body goes through and then I won't feel like a 2 headed monster

my oldest daughter used to have major reactions to everything outside - ants, mosquitios etc there was this benedryl roll on jel pen wayyyy back when that worked wonders for her so I'm not sure if it's still around, but I carried one in purse car house, then when she went to school she had one in the clinic and class. when my brain wakes up I'll try to find if they still have it

rotfl oh my what a laugh I got out of this morning...thanks all joking aside I had no clue it had aspirin in it so I'll be careful because the dr told me to give it to my son (he's 9). thanks all for the info also - what I found weird was, I've taken this every single day (per my EP) since surgery last August for nausea and no black tongue, but the past week I've had pains in my upper stomach and woke up the other morning looking like a chow

I have this weird symptom of somethign hopefully someone will know about. When i take pepto bismol, my tongue turns black, it says its because of the sulfur or infection in the stomach. I read something about Plyori or something similar - anyone know what this could be?

I think I read 80% or something like that were denied on first try so that's why I looked for a ssdi lawyer up front Has anyone ever heard of Allsup? someone recommended them to me, but my original laywer I chose wasn't from there - they seem to have good success rates. blhorn how long did it take for yours to be approved after you got an attny? I'm like anyone else, I cut my hours & pay in half, so its been really difficult financially and now the neuropathy in my left hand is worsening, to my uppter forearm and elbow so it's more difficult to type and that's been my line of work for over 25 years dont even want to complain about how difficult it is to do billing and keep up with office work ugh I complain enough to my husband lol

thank you again so much for all of that information, I'll make sure I request the copies of my records of the eval. Maxine that must have been terrible to have to go through and I'm not sure I can go through that much stress over it...If they deny me, it will be worth it to hire an attny. I'm already going through a court battle and have been since Dec with my health insurer to pay my benefits from surgery...What was supposed to be a 3 month contract disput is now 4 mths and counting. I am going to have to ask someone else to handle ssdi for me if I have to get an attny, not sure how much more I can handle "proving" everything and fighting against the bad guys (just joking) Reen; I agree with you about it being a mommy/woman thing - I've overcompensated for things for so long to my family I'm having to learn to deal with not over doing it and pay for when i do. I think part of my problem is depression and feelings of guilt over things like I have been. Why do we do this to ourselves? I went through so much for the first months of being sick before I found out and felt completely alone because no one believed my heart stopped, they thought I was too young and since I exercised all the time and stayed active like nothing could be wrong with me. I should feel good (vindicated even) that I do something wrong with me and that it's not all in my head, but I just want my "normal" life back If you celebrate Easter, have a great Easter everyone if not, have a great weekend - thanks for helping me and sharing part of you.

Yes it's typical for me, some days are better, others I have no clue what aggravates me worsening. I feel like I started as a rock rolling down a hill picking up stuff going down the hill and now I'm this huge boulder of stuff Meds haven't helped so far with my symptoms, so I gave up on them for now - have to wait till June for my insurance to go back.

thank you everyone, now that I've slept a few hours I feel better I'm, angry he made me feel worse about the guilt I feel over my husband and family having to take over almost everything for me, I got the name of a psychiatrist someone I know goes to and has gotten help so Monday I'm going to call and make an appt I still don't know exactly what he meant, but I'm going to request his eval and I want to take it to the guy I'm going to see, can I get that like you get your normal medical records? I told him I haven't thought of suicide but yes of dying, wishing my heart would stop and that would be a cure to my health problems progressing the way they have and would solve alot of things family wise...he just said hmmmm anyone else feel this overwhelming guilt about stuff? anytime I have to ask anyone to help me with anything it makes me feel even worse - which is one reason I haven't gone back to the dr, my husband has to drive me and sit with kids in the car the entire time, it's been a fiasco with doing that but we have no choice there...or when I cant stand to cook dinner, do dishes, clean, 2 nights ago I almost passed out giving the kids a bath - only I can do that, .... now I do sound really pathetic arrrggg

"If it works for you and it doesn't interfere with your treatment plan or make you turn into an alcoholic then go for it!" I'm not on any meds atm and after the day I've had, Im going to try this out!

I know what I forgot to add - he asked me 3 or 4 times, with my past why haven't I suffered depression until now or tried suicide. I'm still stumped why he asked me about this so many times. I told him I did suffer depression as a teen after I learned my father wasn't dead and wanted to meet me, so maybe I've suffered different levels of depression and just didn't know it?

thank you all, I appreciate the info and thoughts I was just so floored by this appointment I may have been too emotioanl writing the post and not explained enough. After I started getting sick last year and passed out driving and then my heart stopped, not alot of people believed I was as sick as I said, which caused me to withdraw and start having depression symptoms. After I had to have surgery for my heart stuff and ANS problems, I started having panic attacks and depression episodes of remembering my surgery and alot of other things that pointed to depression. I told my cardiologist and she sent me to my PCP, he did an eval and said yes he thought I was suffereing depression gave me Lexapro to try, which didn't help. In October my dr told me I wasn't getting any better and symptoms worsening with neuropathy starting made me feel worse and then she told me by the time I was 50 I would probably have someone taking full care of me. Why wouldn't that depress anyone? strong willed or not? In jan my new drs told me I can't drive again and I was progressively getting worse; neuropathy spreading that I needed to start thinking about that I probably won't get better, that made it worse and I finally filed for SSDI. My ssi rep said I qualified based on my medical conditions and paperwork they got from my specialists, but my pcp refused to fill the paperwork because I still owe him money (ssi doesn't know that) and since he's the one who dx me with depression, he was crucial to that filing. SSI sent me to the dr today for the eval and I thought I was only going to be questioned on things since I became sick so I was frozen and not sure what all to tell him. I know I had a childhood and young adulthood that would curls most people's toenails, but I survived and dealt with it the way I knew how - I compartmenalized what's important and keep it that way, one day I'll deal with it. It's not the best way to cope with life, but it gets me by and helps me maintain compsoure and take care of my family. The dr said I was a strong person and most strong individuals don't get depression? lol I laughed at that, then turned around and told me I needed to be in a mental institute to deal with my past...can I get over depression because of my health problems without meds? I can't even get over the panic attacks right now with so much stress and anxiety over what's happened the past year. I've dealt with much worse stuff than this, so I'm not sure why this is bothering me so bad... I think either way I'm going to go through my insurance and go to another therapist. Thanks again, I was just so floored at this doctor I was in shock.

I had my physch eval for disability for depression and don't know what to do. I had no clue he was going to go so in depth and peruse my childhood, I thought he was only to ask questions about why I have depression relating to my surgery and diseases from 2009. I sat there crying through alot of it and refused to go into parts of my childhood and told him it could stay in the hole I hid it in. He told me my husband was great and strong for stepping up to the plate to take care of me and I should thank him more for all he does for me....yeah kick me when I'm down After an hour he told me he didn't think I was depressed but needed to be in a mental institute and I have another physch disorder but couldn't tell me what it was, I would have to go outside of his office for that diagnosis. OMG I don't know how to feel, has this happened to anyone else? I know he works for SSI and needs to prove I'm not depressed so they don't have to give me disability, but I'm really depressed now over him saying I had deeper issues to deal with and need to be locked up. He agreed my physcial problems are severe enough to be considered a disability, but not depression. Should I see an outside mental health person {cant think of the name?} or should I just wait until they deny me? sorry to rant, I'm just floored right now

summer I could have written most of your post and feel the same way what I find funny is at first when I was dx and then had heart surgery and found out how sick I was, most of my family and friends asked tons of questions, came to see me and helped out...as the months have gone I'm stuck in my house and have had to rely solely on my husband. We completely changed our way of life, and no one cares anymore that I'm sick - they don't come to visit anymore and are honestly sick and tired of me not "recovering", when someone does call and ask how I feel, I used to say oh about the same then they go into if I got out more or tried exercise or physical therapy I might feel better...now I just say I'm fine and then change the subject... it's frustrating to me that even with medications and trying everything my drs have suggested that I still feel the same, and only slightly better on some days - but other parts of me like neuropathy is worsening and widespread now to where before it was only hands & feet - I just can't explain to them what neuropathy feels like; I'm not sure what my family or friends think anymore - am I overexggerating or lying about how I feel. I posted in another post about Easter being a prime example - someone in our family changed what we're doing this year and I wasn't given a choice about anything...we used to do egg hunts first thing in the morning about 9am, which I knew wouldn't be a problem. Now it's going to be outside at 1pm which will be about 85 here and I have a huge heat intolerance problem. I said something to my husband like who decided to change the plans? he just sighed; so I knew it was his sister because of her b/f's plans, so do I act spoiled and say we cant have it at 1pm and ruin it for the other kids or do I just grin and bear it and hope I dont get sick. I feel so selfish actually telling them I NEED it to be in the morning. Before I got really sick, we were used to going off Friday - Sunday; always on the go and doing something sometimes during the week we went off in the afternoons too, now I'm lucky to feel good enough to walk to the car in the garage or walk out the 20 ft to get the mail. I tried Lexapro to help with the depression I developed after surgery, but it didn't help and the other meds I've tried may help my symptoms somewhat but the fatigue and sickly feeling I get isn't worth it.

wow thanks for the info on the voice to text software, sometimes my left hand is completely numb or the nerves so bad I can't use it and that would work wonders, cant wait to try it

Sorry to hear you're going through this, but I understand and besides me having to rely solely on others, it makes me feel incompetent that I can't even drive. I passed out in Jan 09 driving and been on driving restrictions since then, life has certainly changed and it's extremely hard coping with part of my independence being taken away. A word of caution about driving: I don't know how it is in other states, but I was told (FL) that if I had it in my medical records I had syncope or near syncope and I had an accident, my insurance wouldn't cover the accident. I don't know what I would do if I were in your shoes, I feel really bad knowing you live alone - at least I have family and friends here who help me with errands that my husband can't get to. What about a local organization to help people who are disabled? Not saying you're disabled, but in a sense we all are that can't drive or have problems driving

I understand now after reading it again I think... sometimes to get the info to my brain is impossible sorry So you get B12 shots prescribed by your doctor that has sodium in them, the link you posted was a link to the supplement, and you also take Methylcobalamin 25 Mg correct? I'm willing to try anything to help with my neuropathy...if I missed the mark on understanding this time just ignore this post and I won't ask any other questions because I feel really dumb not understanding lol

sorry I'm really confused, but that's normal for me.I went to the link and its an article on what it does. What am I missing or not reading? I see there's a store in this link but I dont find intermuscular Methylcobalamin 25 Mg?