prettyinpink

You poor thing. My thoughts are with you. When I have an allergic reaction to something I have to take antihistamines for a few weeks afterwards because it takes a while for my body to settle back down again. If you are suddenly histamine sensitive it might be that they are keeping you on it long term which is usually ok as a lot number of people take zyrtec, claritin regularly. When my bloodpressure spiked from the midodrine it caused headaches, hotflashes, nauseau. If this has all been since you stopped eating carbs is it possible that maybe you aren't getting some nutrition from carbs that you needed? Hang in there and hopefully things will calm down soon.

I think its always important to different between the types of pain. Is it constant pain? Does it get worse with movement? Does anything make it better? worse? If you are suddenly not active and your muscles are atrophying that can cause pain that increasing activity might help. I know what I'm not feeling good I lean on walls,chairs etc when I get around the house so I get aches in my arms from using those muscles more. Does stretching/hotpack/coldpack make a difference. If you go to the dr. is important to tell him what the pain is like-painkilers are good and helpful but if theres another option I would look into it.

Thanks! I suppose to start taking DDVAP tonight as a replacement for the florinef. Any comments on this medicine-how well it worked, side effects etc. It was a SUPER quick diagnosis. The symptoms started sat and I was diagnosed wednesday. I may have been having symptoms earlier like fatigue and mild tachycardia but being a type 1 diabetic and feeling highs and lows all day long makes other symptoms not as noticeable. I can relate to waiting forever for a diagnosis the autoimmune angioedema was a disaster.

I actually wake up at 6 am take my meds and go back to sleep til 7. This has REALLY helped my mornings because they have kicked in before I even try to get out of bed. I also ride a stationary bike for a few minutes every morning before I leave my bedroom which helps gets my muscle pumps working

Dr.Grubb tried to explain how type 1 diabetes lead to or is associated with my POTS but i didn't really understand. I couldn't find any research on the two being associated. Is anyone else a type 1 diabetic with POTS or know how they're related?

I carry a camelbak waterbladder with me everywhere I go. Its a rubber water container that you fill up and put in a small backpack. It keeps my water cold and it conviently has a hose from the container to a mouth that you suck from. Its usually used by backpackers.

She's amazing. She's a HUGE motivation to keep my moving. I should mention i'm on a high salt, high gatorade diet lol. Take adderall. Ride a recumbent bike almost daily.(these are just my POTS interventions) But I still an only stand/walk for a minute before I pass out. I'm suppose to start DDVAP i think thats what its called.

Hi! I'm a 22 year old physcial therapy grad student. I've been a type 1 diabetic since I was four years old. I was also diagnosed with auto immune angioedema, celiac disease, NCS, and Hashimoto's Toxicosis-total thyroidectomy. I was in the hospital in august 09 for a week because my autoimmune angioedema flared which causes anaphylaxis and requires tons of IV meds. I got out of the hospital and could tell my pressures were running low. I went to see my cardiologist 2 days after my discharge. He thought it was just from being in the hospital. He prescribe midodrine for a few days. The next day I walked into my kitchen and passed out. I stood up and passed out again. I called my dad who called his friend who is a cardiology resident who got me an apt that night with Dr. Grubb. By 10pm that night I had a diagnosis that I knew very little about but enough to know my life would never be the same. Im allergic to mestinon and the florinef is making my blood sugars high so I stopped that 2 days ago which made everything worse. I'm still in PT school full time. Oh and I have an amazing 1 year old service dog that can tell by my smell when my bloodsugars are out of range because I can't feel it changing. I'm sure I'll have a million questions later but for now I just wanted to say Hi! Valerie