lchammond

Hi Dustin. I am trying to figure out how this site works. I am 52 the mother of a 20 year old and was diagnosed with POTS 6 years ago. At that time I was diagnosed with EDS-III. 2 years later Panyopituitarism. I am sorry that you are struggling. The autonomic nervous is responsible for so many different functions. As one physician said to me, POTS is a syndrome. I have also had neurological symptoms and my emotions are unpredictable. I found this site awhile ago, but didn't have the energy to participate. I think this is a great place. People with POTS understand the struggles with the medical profession and the ever changing symptoms of this illness. I would encourage you to explore counseling to help you and your family better understand what you are experiencing. Don't be afraid to talk to your drs. about the symptoms and if they don't understand, try another dr. For me one of the hardest things to get used to was not having control of my body anymore and every day is different. Be easy on yourself. Pots Place is a wonderful website to find information. Each day you need to listen to your body and try not to have to high of expectations. Good luck and hang in there!