Report Weight in Dysautonomia Discussion Posted February 14, 2012 I gained about 10 pounds, mostly over time--- I was super active before, and always had a ton of muscle, which kept me fairly lean. However, I did have a horrible period where the doc I was seeing did an elimination diet and even eating 3,000 calories a day I was still losing weight like crazy. I dropped like 23 pounds in a little over a month and was only a pound or two from being underweight. However, I also had my highest weight up 20 pounds from my regular weight (and 30-35 from my pre-POTS weight). Turned out that I was in the early stages of heart failure, so it came off fairly quickly. I still am holding on to my 5 pounds of less active weight and my 5 pounds of b.b. weight though. My body is actually really good about trying to stay close to its "set point" weight wise.