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JV06

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    My kids, My husband, no much to tell just that I am intrested in getting back to my life back on track.

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  1. My mom was diagnosed wrong with Parkinsons 7 yrs ago... 2 years ago they found that they were wrong she has MSA. A year before her MSA diagnoses I was diagnosed with POTS. We both have a autonomic problem her OBVIOUSLY WORSE than mine but I thought that autonomic problems weren't genetic am I misinformed? Or is there no lynk between the two at all? or is someone missing something? Curious I am sorry I am a horrible speller!
  2. Thanks sooo much... I will start it and we will see how it turns out... hopefully as well as the woman in the study.
  3. Yeah the Tachycardia bothers me but the dizzy spells are what gets me, and the exhuastion. With the Tachycardia under control the dizzy spells shoud be too right? I was diagnosed in 2006 with POTS in 2006 but I still don't understand any of it. Thats why I am on here hopefully talking to people with the same problems can make it to where I don't feel alone or crazy! I am new on here... I don't even know how to put my dx on the bottom like everyone else has.
  4. I amsupposed to start Procoralan 5mgs .... But I dont know much about it, because I am a miliitary dependent and being seen on the economy my dr. and I have a bit of a language barrier. he speaks decent english but we still don't understand each other all that well. From what I understand from him it is one of the best things for POTS patients who have problems with beta blockers dropping there bp too much. Is this really the miricle drug he is making it out to be? Is this gonna help me function better?
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